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Living with CF at 24 and struggling

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Cystic Fibrosis
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Posted 10/5/2013 8:51 AM (GMT -8)
My Name is Lucy. I am 24 years old and suffer from CF. I had to leave uni it got so bad and i am not longer aloud to work. I live on the isle of wight one of the best place's in England to be for a CF sufferer. But i am struggling. I get very lonely as people don't understand. Which i get as they don't have it. I am lucky and have some very good friends, but they all have life's to lead and i get very lonely as they work in the week and i am not aloud to. I feel lonely most days as i am by myself even though i have the most supporting mother and sister. I get so frustrated as i had so many plan's which i now have to live with won't happen. I was 18 when i was told of my condition. I struggle to date/trust as i am afraid i will fall in love only for someone to turn around and not be able to cope with it. Which is there right but i find it tuff as i would love to have that normality back in my life again. Despite being hurt badly in the past and being left just after i was diagnosed its still something i want. I feel very trapped in my life which is horrible because i actually have many wonderful thing's in my life. I want to know i am not the only one???? so if anyone else feel's trapped the way i do please chat to me!!!
Posted 9/10/2014 1:51 PM (GMT -8)
Hi Lucy. I hope you are feeling better. I read your post when trawling the internet. I'm the mum of an 11 year old girl with cf. I just wondered if you had been on the Cystic Fibrosis Trust Forum. I think there might be some really nice people to talk to, with and without cf. There's also great stories of people with cf who have found love. It sounds like you weren't with the right person when you were diagnosed, this was a lucky escape for you. As you get older you realize love isn't prescribed, we can't actually control who we fall in love with, with the right person cf will be no obstacle. I notice you live on the Isle of Wight, obviously I want to do the best for my daughter, I'm going to be moving house soon and would like to move somewhere to enhance her health. You say where you live is one of the best places for cf, if you have the time could you let me know a little more about it? Good luck, I got divorced 4 years ago and don't want to get hurt again, so with or without cf you aren't alone in being nervous of relationships.
Jan
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