Living with CF at 24 and struggling

My Name is Lucy. I am 24 years old and suffer from CF. I had to leave uni it got so bad and i am not longer aloud to work. I live on the isle of wight one of the best place's in England to be for a CF sufferer. But i am struggling. I get very lonely as people don't understand. Which i get as they don't have it. I am lucky and have some very good friends, but they all have life's to lead and i get very lonely as they work in the week and i am not aloud to. I feel lonely most days as i am by myself even though i have the most supporting mother and sister. I get so frustrated as i had so many plan's which i now have to live with won't happen. I was 18 when i was told of my condition. I struggle to date/trust as i am afraid i will fall in love only for someone to turn around and not be able to cope with it. Which is there right but i find it tuff as i would love to have that normality back in my life again. Despite being hurt badly in the past and being left just after i was diagnosed its still something i want. I feel very trapped in my life which is horrible because i actually have many wonderful thing's in my life. I want to know i am not the only one???? so if anyone else feel's trapped the way i do please chat to me!!!