confused (symptoms vs. salty sweat)

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New Member

Date Joined Sep 2005
Total Posts : 1
   Posted 9/5/2005 6:17 PM (GMT -7)   
My 7  month old son seem to have a lot of CF symptoms - cronic productive cough, unability to spit up mucus, loose very smelly frequent bowel movements. I took him to the Ped almost every week as he was not gaining much weight. Last Friday they did a chest X ray that showed no sign of lung infection and, therefore, my Ped said it is extremely highly unlikely that he has a CF.
I have also given hima steam bath today to losen his mucus. And, of course, licked all of his sweat to see if it was salty. It was NOT salty at all. 
May be he does not have a CF after all, it is just me sweating over it. I admit I am a neurotic and anxious first time mom.  
Just wanted to ask for your opinion - does the fact that his sweat from the steam bath does not taste salty mean he may not have the desease????
Thank you!
An anxious first time mom

Regular Member

Date Joined Sep 2005
Total Posts : 318
   Posted 9/6/2005 7:47 PM (GMT -7)   
Dear Linamir,
Please don't fret yet.  With CF, there are so many symptoms that are wrong that you would KNOW in your heart your baby has it.  These are some of the symptoms listed below.
**Belly distention (looks like pregnant with small upper frame chest).
**Skin smells and taste irony and or like bowel back up.  Your baby would be screaming with pain after eating, almost turning blue from the pain.
**Bowel movements would be greasy orange, to yellowish frothy color.  Most of time, without digestive enzymes your baby could not have a bowel movement on his/her own. 
**Severe weightloss, looking frail and thin.
**Very apnea breathing or abnormal breathing patterns.
It goes on and be on the safe side because there are different mutations of CF and different symptoms can arise, you can get your baby tested for a litte over 100.00, covered by insurance if you have it.
Hope this has helped you some.
Mom to twins with CF.  If there is a cure found for CF, you would hear this mom ACROSS AMERICA...YESSSSSSSSSSSSSSSS!!!!

New Member

Date Joined Oct 2005
Total Posts : 6
   Posted 10/13/2005 5:41 PM (GMT -7)   
My motto is it doesn't hurt. If you feel your child may have symptoms. Ask for the test. I did and I am thankful I did because my son did indeed have CF. My doctors could not believe it and if I didnt request the test I do not believe he would be diagnosed today. A mother can tell if there is something. First time or not do not let that discredit you. I am a first toime mom too.

Hope everything goes okay. Please let me know.

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