The cf blues,
Those days when you just wish for a break because everything feels so hard. When there's pain and no treatment to fix it or you're coughing and there's no way of just getting your lungs to shut up so you do something. Have a day out and enjoy it rather than being too tired to have the fun you need to have to keep sane.
What things do you do to get through it? I have a strategy that works now, I never used to. I drill into my head that it'll be better tomorrow because I'll take a rest day and do nothing to let my body have a break. I have a million hobbies, I crochet, play online computer games (socialising without having to move and something you can still do in hospital), I paint miniatures and they're part of a game I play with friends so when I'm unwell I get more painting done and when I'm better I can put my awesome painted army against my friends. I've started learning to cook (chef boyfriend so he's helping), I read, make cards. Watch random family feel good movies on netflix. And I also push myself where I can to go swimming though I can't swim very well and have to use a float to stop the suffocating feeling of water pressure crushing my lungs.
It doesn't stop the blue feeling or the fed up, but recognising those feelings are there and distracting myself from them makes me deal with it better somehow.
So Yeh, what sorts of things do you do to make you feel a bit better and make life more tolerable when the cf blues strike?
Hey, I'm Gem with CF, age 27 and diagnosed at 2 years old. I'm from the UK and say weird things sometimes. I'm no expert but I've lived through a lot of CF stuff.
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum, Myopathy, Polyarthralgia.