Survey for women with cystic fibrosis

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Lauren Bokovitz
New Member


Date Joined Dec 2014
Total Posts : 1
   Posted 12/6/2014 11:24 AM (GMT -7)   
Hello! My name is Lauren Bokovitz and I am a genetic counseling student who is researching how women with cystic fibrosis make decisions about becoming pregnant. If you are a woman over the age of 18 with cystic fibrosis, please consider taking my survey!

The survey will take 10-15 minutes to complete and four participants will be entered into a drawing to receive a $25 Amazon gift card. More information is provided at the link below.

Thank you!


Permission was obtained form Peter Waite to post this survey.

(I just made the link hot for you)


/jfe.qualtrics.com/form/SV_6LH8KBQWXPgsJVP

Post Edited By Moderator (LanieG) : 12/8/2014 9:29:17 AM (GMT-7)


Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 12/7/2014 5:35 AM (GMT -7)   
Hi there Lauren,

I've followed the link and it says "this URL is incorrect". I think it might be right and the link is wrong, as usually urls are automatically formed into clickable links on this site and its not a clickable link, so had to copy and paste it into new browser page.

Gem
Moderator of the Cystic Fibrosis forum

Hey, I'm Gem with CF, age 28 and diagnosed at 2 years old. I'm no expert but having CF myself I've learnt a few things along the way.
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum, Myopathy

Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 12/7/2014 8:04 AM (GMT -7)   
Maybe my tablet. Tried to show the message and its messing about with photo bucket links too. I'll log my computer later and check again.

Judy is the link taking you anywhere? Even hotlinked it says url is incorrect.
Moderator of the Cystic Fibrosis forum

Hey, I'm Gem with CF, age 28 and diagnosed at 2 years old. I'm no expert but having CF myself I've learnt a few things along the way.
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum, Myopathy

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 12/7/2014 2:37 PM (GMT -7)   
No, it's an incorrect url. I guess we tried.
Thyroid forum moderator

Ulcerative colitis; 8th year of remission with Remicade. Inflammatory osteoarthritis; osteonecrosis from steroids. Grave's disease post-RAI and now on Levothyroxine. Type II diabetes induced by steroids.

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 6024
   Posted 12/7/2014 2:51 PM (GMT -7)   
I found that she is at Case Western and I sent her an email to her school address to tell her about the problem.
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 12/7/2014 3:44 PM (GMT -7)   
Thanks Lanie, and Judy.

Hopefully Lauren realises there's a problem and comes back to fix it. :)

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 6024
   Posted 12/8/2014 9:30 AM (GMT -7)   
I heard back from Lauren and she put the link in the email which I copied onto her first post and it seems to work. Fingers crossed!
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 12/8/2014 1:58 PM (GMT -7)   
Thanks Lanie, you're a star!!! I wouldn't have even known where to start contacting Lauren. The link you posted works ok :)

I have completed the survey now, I feel where the responses were "more likely to get pregnant" and "less likely to get pregnant", it needed a middle option such as "just as likely to get pregnant". But otherwise it was a quick survey and easy enough to follow. :)
Moderator of the Cystic Fibrosis forum

Hey, I'm Gem with CF, age 28 and diagnosed at 2 years old. I'm no expert but having CF myself I've learnt a few things along the way.
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum, Myopathy

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 6024
   Posted 12/8/2014 3:32 PM (GMT -7)   
Hi there Gem (or shall I call you 'bijou' :-) ), the original link had "cwr.." and I know that refers to Case Western Reserve University, so I went to that site to find her name and ... I should have been a sleuth. yeah
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating
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