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shoni
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Date Joined Jan 2015
Total Posts : 4
   Posted 1/9/2015 3:35 PM (GMT -7)   
My baby tested positive at birth for cf. I see that a lot of false positives are common. He had another test a week ago. How long does it take for results to come back for cf screens? Does anyone have any info on that it would be greatly appreciated. Thanks!

Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 1/12/2015 1:36 PM (GMT -7)   
Hi, welcome to the healingwell forums,

I'm guessing the test at birth was the heel prick test? I'm not sure about the total accuracy of that one as it tests for a certain chemical in the blood. A positive result can indicate CF and that is what it usually mean but it can also be positive with other pancreatic diseases.

From memory the results generally take about 3-6 weeks to come back from a genetic blood test. Do you have a follow up appointment with the people who carried out the test? Was the second test a sweat test or a genetic blood test?

Sorry for all the questions, it's just there are several tests associated with testing for CF, though I don't know the timescale myself others might so it may be helpful knowing the type of test carried out.

Hope your baby is well otherwise.

Gemma
Moderator of the Cystic Fibrosis forum

Hey, I'm Gem with CF, age 28 and diagnosed at 2 years old. I'm no expert but having CF myself I've learnt a few things along the way.
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum, Myopathy

shoni
New Member


Date Joined Jan 2015
Total Posts : 4
   Posted 1/12/2015 2:09 PM (GMT -7)   
Thank you for your reply. He had a secondary blood test. I keep thinking he had all the symptoms but I dont know if I am just being paranoid. My other children are not ill. He had a bit of a cold as everyone in our household was ill. I am just hoping he is ok. I have an appointment tomorrow. I thought the results would be in by now so i thought maybe he is ok...but then my paranoia takes over. Its horrible not knowing.

Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 1/12/2015 4:00 PM (GMT -7)   
I agree, the worst thing is the unknown. Once you know either way you can get on with it. Until then you will be looking for symptoms and that is normal.

A lot of children with cf have no signs until they're at least toddlers. CF immune systems against popular belief are actually pretty nifty. Studies have been done that showed that we produce a lot more white blood cells than most normal people. My sister who doesn't have cf I swear is ill every other week with colds, tonsillitis etc. My brother and myself who do have cf hardley ever catch a cold. So high chances are it will just be a normal cold he's had and won't have been a big problem so try not to panic yourself with things like that (it's hard, I know, I am the biggest panicker).

A lot of the time cf can be seen early with bowel problems. The problems can be seen on ultrasound when still in the womb. Though not all mutations of cf present with any bowel problems so that isn't always the case.

Hope the appointment tomorrow goes well. I hope your son doesn't have cf, though just to take a good side from it it's been caught super early. The earlier cf is diagnosed the better.

Good luck
Moderator of the Cystic Fibrosis forum

Hey, I'm Gem with CF, age 28 and diagnosed at 2 years old. I'm no expert but having CF myself I've learnt a few things along the way.
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum, Myopathy

shoni
New Member


Date Joined Jan 2015
Total Posts : 4
   Posted 1/12/2015 4:34 PM (GMT -7)   
Thanks again. I am hoping he is ok. I will definitely be on top of things if he does have cf. I am a nurse so hopefully that will be beneficial. I am glad to see that you are in your late 20s. I know they have made great strides in cf research. I have decided to be active in the pursuit of a cure for cf....wven if he doesnt have cf. Fingers crossed he is ok. Good health be with you and thanks again.

Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 1/19/2015 4:22 AM (GMT -7)   
Hi shoni,

I just thought I'd check in and see how things are doing. Have you had any information from the tests yet?

I hope all is well

Gem
Moderator of the Cystic Fibrosis forum

Hey, I'm Gem with CF, age 28 and diagnosed at 2 years old. I'm no expert but having CF myself I've learnt a few things along the way.
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum, Myopathy

shoni
New Member


Date Joined Jan 2015
Total Posts : 4
   Posted 1/21/2015 6:19 AM (GMT -7)   
Hey ,

Thanks for checking in. The results wont be back until friday. My fingers are crossed that he is ok. I will let you know when the results are in. It is nice to feel supported in times of crisis...I appreciate that.

Shoni
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