I understand why you're scared the unknown is always so much scarier than the known. When I was 19 my muscles started wasting away with no explanation. The doctors thought the only reason could be muscular dystrophy, so they took a muscle biopsy and genetic tested it. They could see the breakdown of muscle but there was no genetic reason in the end. I'm still weak because of it and now it's just written as a Myopathy diagnosis. I still wish they had a cause or a reason for it, not that I want another disease but to be able to understand my I'm so weak would be nice. It's been pretty scary and dealing with hospitals and waiting on answers is one of the worst things.
I get erythema nodosum recurrent, everytime I get a chest infection or my bodies stressed out in anyway it comes back. If I get the flu jab or even a cat scratch then I get the bumps come up on whichever arm it was. With an infection or virus they come up on arms and legs. Nothing that I can the to treat it so just have to live with it and try to find the root of what's brought it on. Was yours a one off episode?
Moderator of the Cystic Fibrosis forum
Hey, I'm Gem with CF, age 28 and diagnosed at 2 years old. I'm no expert but having CF myself I've learnt a few things along the way.
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum, Myopathy