I'm newbie. I'm asian and this is a rare disease in my country. Only affected less than 20 people in my country. My son is 18 months and he was diagnosed when he was 1 yr. He had failure to thrive and repeated chest infection. He had twice pneumonia and 1 time pseudo. I am worry about
him. He had chest recession even he is well. He seldom cough and he is so active. The recession is worrying me a lot. Can someone explain it ?
Yesterday was his appointment with his medical team and they said my son need to admit in the hospital because his lungs sounds blockage with mucus. Its happened because he don't know how to spit out his sputum.And result from the CT Scan showed that his lungs already had scars because of previous infection. What does its mean? Is his lungs ok? Or in danger?
They recommend to use CPAP machine at night to help him breathe. Does anyone use having this problem before. Can share experience?? Is the CPAP machine really helps?