I agree, everyone is different and some with CF are pancreatic sufficient. I was the opposite, my mum could only get me to eat fruits and veggies as a child and I was severely underweight. It was only when I started on the junk food that I started putting any weight on at all. I just didn't agree with then tone of eat2bwell's post. The attitude of "you cause these problems in your child because you don't feed them a raw diet" is wrong, especially in CF where diet plays a huge role in having the energy to fight disease. Getting vitamins is a pain and we have to have 5 times the dose a "normal" person has to reach a point where our vitamin levels are somewhere in the normal range.
Mostly, I worry because I hear from parents on a facebook group I'm on, how they've stopped all their kids meds and they're just feeding their kids raw diets and colloidal silver and cannabis and their kids have lung functions of like 30% and they can't work out why as they're doing all this good stuff for them and not feeding them any of the "bad" stuff the doctors have suggested (seriously one parent was asking whetehr they should let their two year old smoke cannabis and would it help them.....). Parents are impressionable when they're worried about
their kids. Sometimes I think the internet can be a harmful place and it should never take precedent over what is suggested by the childs own doctors, dieticians, medical professionals who can do tests and have the childs history infront of them.
I'm not against people trying new diets to see what suits them best, however they should do so with guidance as what's right for one person isn't right for the next.
Moderator of the Cystic Fibrosis forum
Hey, I'm Gem with CF, age 29 and diagnosed at 2 years old. I'm no expert but having CF myself I've learnt a few things along the way. Diagnosed with:
Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Oste
openia, Erythema Nodosum, Proximal Myositis, Polyarthralgia
Post Edited (Gemsi) : 7/15/2015 5:33:12 PM (GMT-6)