Just a question to ponder on for all who has or has children of CF.
Do you think that the muscle's in your/children's body are diminished giving the starvation appearance?
When my boy's were infants...their skin did not feel normal and was wondering if anyone has noticed changes in muscle or skin appearance.
Kathy, mom to identical twin boys with CF (9yrs).
Forum Moderator, Cystic Fibrosis.
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.