Posted 3/14/2006 4:27 AM (GMT -7)
I have a port just above my left nipple, and in my opinion, as useful as it is, it is one decision that I regret. I am 18 yrs. old, and was already very self consious to begin with, now I have this HUGE dome sticking out of my chest with an equally obvious tube coming from the top of it. I don't even like to take my shirt of to go swimming in public, EVERYONE asks the SAME question: "what is that?", followed immediately by "why do you have to get so many IVs?", and then comes the "what is CF" question, and finally the pity that I DESPISE. I just wish people would mind their own l)amned business and keep their curiosity to themselves, and their save their pity for someone who needs it. I know this is very superficial of me, but try to understand where I am coming from when I tell you that I am still a virgin, so imagine how apprehensive i am to take my shirt off in front of a girl for the first time (I can hear it now: "eww! what's that?!") I am currently giving VERY serious thought to getting this wretched thing removed. One of my major concerns when I was considering getting the port was if it would be noticable. I still remember what the doctor said: "it will be slightly noticable", he never told me i would have this massive tumor-like object sticking out of my chest.
It's not only the aesthetics that bother me. When I got it, I was under the impression it was a one-stick-when-needed sort of thing, and my doctor nor my family (of which several members were oncology patients and had ports) never bothered correcting me. It's not a one stick it's done thing, and the sticks hurt just as much now as they did before i had it (another misleading bit of info i was given). This wretched thing has to be stuck once a month, whether i need medicines or not, just to be flushed out, and even when i do need medicines, the needle has to be changed once a week. A PICC line didn't have to be changed every week, and it came out after i was done with my medicines, they also didn't leave some unsightly blemish to my body that made me embarassed to take my shirt off. Finally, a PICC line also allowed blood draws (as does the port), and also could be used for CT scan contrast injection fluid (you can't get that through your port, you have to get an IV for that even with the port). HOW IS THIS ANY BETTER THAN HAVING A PICC??! I wish I could punch the doctor that convinced me to get it with his misguiding information.