sorry for late reply.
In my country, I mean Malaysia, we do not have a CF Centre. My son only referred to General Hospital under this Respiratory Specialist team.
For now, my son only take :
5x creon a day
2x CPT & 3-4X CPT when not well
2ml vitamin K
2x Flixotide inhaler
2x Ventolin inhaler
is it ok? Is it enough? I know it sounds stupid but if I compared what he took now with what other Cfers in UK & US take, it totally differ.
His Dr do not recommend for nebuliser.
But I will give him 3% hypertonic saline 2x a day when he has cold & chesty cough ( I bought from Pharmacy)
Is it safe for 18 months baby?
I'm quit worry about
him but I don't know to whom should i refer. We do not have any support group here and the Dr keep saying that inhaler is enough for him. But base on my reading I can see most of CF baby will take nebuliser.
Pls correct me if Im wrong.
I am really needs your opinion on his meds