Twinstride, if it rubbed their bellies than their vests didnt fit properly. If it is just that it is too low on them, they should look at getting the other model of vest (same compressor but different half-height vest). I use mine on three frequencies 10-12-14. 10mins per frequency and pressure 5-6. I do it three times per day (30 mins of treatment). 90 mins per day. But I'm still breathing and my lung function is very good.
Littlebird, I have had my vest for 4 years now and still think of it as a blessing. I had to fight for it, went up against my provincial government. I am the first one in BC to get one paid for and - as of writing this - the only one. I have sent my documentation around to other cystics in the hope that they can duplicate the process and get a vest themselves.
Do I get frustrated with having CF? YES!!! Especially when they're poking me for the 50th time in 4 days. Yes it has actually happened, not exagurating.
Do I get frustrated with having the vest? Yup sometimes I get really PO'd that I have to stop everything and do my time. People who smoke realy make me mad because they're wrecking perfectly good lungs. I figure I should just trade with em and let them see what's in store. But thats another topic entirely :)
I also have my breakdowns - just crying, no prozzak required - I wonder about
stopping all the med completely but thats not an option. Life isn't great but the alternative isn't all roses either.
I do take St. Johns Wort (natural herbal mood-helper, safe to take with my meds). It keeps me from going CRAZY *lol* - Crazier? LOL :)
I have the benefit of living next to a girl with Cerebral Palsy. She is sharp as a tack mentally but physically cant even get out of bed. She is a constant reminder for me that there is always someone somewhere who is going through far worse than I am. Even when I'm poked 50 times, I know somone just got poked 51. Keeps me sane I think. Till there's a cure we just gotta keep dealing with what we've got. Just keep smiling!
Post Edited (Tayra) : 11/26/2005 1:23:00 AM (GMT-7)