The TidBit Info Room!

Twinstride

Regular Member

Joined : Sep 2005

Posts : 318

Posted 10/16/2005 3:31 PM (GMT -7)

Have you been told a tidbit peice of information from your CF Care Center ONLY that ALL CFer's could use? Well share it here.

This info could have come from: Doctors, Nurses, Respiratory Therapists, Nutritionists, Social Workers, Insurance Personnel...etc. If you have questions about what a person had posted in this tidbit room, always check with your healthcare provider for more accurate information.

Please, no advertising to break the forum rules. "Please be direct and to the point".

Here's my example:

"No over the counter cold medication with a cough suppressant".

Kathy, mom to identical twin boys with CF (9yrs), daughter 20, grandaughter 2 1/2, one on the way!

If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.

Moderator, Cystic Fibrosis. "If there is questionable doubt, check it out"....with your healthcare provider!. We are here to offer support, encouragement, and answer your questions as best we can. Don't hesitate to step on in and enjoy!.

Twinstride

Regular Member

Joined : Sep 2005

Posts : 318

Posted 10/16/2005 3:33 PM (GMT -7)

Another tidbit:

High fat, high protein, meals and snacks.

Kathy, mom to identical twin boys with CF (9yrs), daughter 20, grandaughter 2 1/2, one on the way!

If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.

Post Edited (Twinstride) : 10/16/2005 4:57:06 PM (GMT-6)

Robertson

Regular Member

Joined : Nov 2005

Posts : 21

Posted 4/11/2006 10:44 PM (GMT -7)

Eat often, not always full meals but often, and do those treatments

pour on the fat and hope for the best

Twinstride

Regular Member

Joined : Sep 2005

Posts : 318

Posted 4/18/2006 2:21 AM (GMT -7)

Bumping this up, I would like to see more input if possible...come'on you guys, step on up!

Kathy, mom to identical twin boys with CF (10 yrs), daughter 21, grandaughter 3, Newborn grandson

If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.

Moderator, Cystic Fibrosis. "If there is questionable doubt, check it out"....with your healthcare provider!. We are here to offer support, encouragement, a shoulder to lean on, and answer your questions as best we can. Don't hesitate to step on in and enjoy and remember! "Never give up hope for a cure" one day we will get there!".

To support HealingWell.com, follow the link below or click "Donate" on the top menu:

https://www.healingwell.com/donate/

Chaser

Regular Member

Joined : Apr 2006

Posts : 91

Posted 4/18/2006 7:05 PM (GMT -7)

Cannot stress enough the importance of exercise and being diligent with your treatments.

Chaser

Regular Member

Joined : Apr 2006

Posts : 91

Posted 4/25/2006 1:52 PM (GMT -7)

Here's a home remedy for kids or adults with CF who are excessivly salty when they sweat or during the summer (salt crystals forming on the skin): take a tablespoon of kool-aid and add a half teaspoon to a teaspoon of salt. Drnk it down. You can have 1-2 tablespoons of this, and it will help balance the salt in your body.

kristins mom

Regular Member

Joined : Sep 2005

Posts : 27

Posted 4/26/2006 11:33 AM (GMT -7)

During the warmer weather, salty food such as popcorn, crackers, etc. are good snacks. Make sure alot of fluids are consumed frequently. Also, when in the heat for extended periods of time, pedialyte is beneficial--especially with smaller kids. 6-8 ounces goes a long way in helping to stay hydrated.

stephen101

New Member

Joined : Jan 2006

Posts : 19

Posted 4/26/2006 2:35 PM (GMT -7)

If you feel chesty on your left side lie on your right or vice-versa! Gravity will help your physio hehehe

cf is a part of me but dont define who I am

Twinstride

Regular Member

Joined : Sep 2005

Posts : 318

Posted 6/15/2006 3:28 AM (GMT -7)

Bumping this topic up!

Kathy, mom to identical twin boys with CF (10 yrs), daughter 21, grandaughter 3, Newborn grandson

If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.

To support HealingWell.com, follow the link below or click "Donate" on the top menu:

https://www.healingwell.com/donate/

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