Posted 11/13/2015 5:12 AM (GMT -6)
As Austin said Orkambi is a new medication that's out that helps treat those with double df508. You should ask your doctors if you aren't on it already. Are you seen by a CF specialist team or a regular doctor. Not 100% sure how it works over there as medical care is a bit different but I know you do have specialist teams but they're usually long distances to travel unless you live in specific areas.
The main cf medications are :
Enzymes like creon or zenpep
Long term antibiotics -oral and nebulised
Short term antibiotics-ciprofloxacin, septrin or IV antibiotics
Vitamin supplements - mostly A,D,E and K
Meds for acid reflux like omeprazole
Physiotherapy- most use the vest in the US but there is also acapella, PEP, Aerobika and Flutter.
It's hard keeping on top of treatments and trying to have a life, it must be harder when you've only just being diagnosed and quite scary. I think it will get better, easier to manage and also easier to manage relationships.
If you have any questions, do ask.