Is everyone doing ok?

Gemsi

Veteran Member

Joined : Feb 2007

Posts : 1050

Posted 11/15/2015 4:54 AM (GMT -6)

How is everyone, keep us updated :)

Gem

Moderator of the Cystic Fibrosis forum

Hey, I'm Gem with CF, age 29 and diagnosed at 2 years old. I'm no expert but having CF myself I've learnt a few things along the way.
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum, Proximal Myositis, Polyarthralgia

Wiley Coyote

Regular Member

Joined : Jan 2015

Posts : 37

Posted 12/9/2015 4:58 PM (GMT -6)

Not doing too well. Thanks to Orkambi, I lost about 6% of my FEV1 (from 43 to 37%) and about 15% of my FVC within 5 short weeks. Started talking transplant centers with my doc. If I fall too much more I'll need to think about getting listed.

CF DDf508 w/ CFRD (dignosed 3 months) 43 years old, 2 kiddos

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