Is everyone doing ok?

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Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 11/15/2015 3:54 AM (GMT -6)   
How is everyone, keep us updated :)

Gem
Moderator of the Cystic Fibrosis forum

Hey, I'm Gem with CF, age 29 and diagnosed at 2 years old. I'm no expert but having CF myself I've learnt a few things along the way.
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum, Proximal Myositis, Polyarthralgia

Wiley Coyote
Regular Member


Date Joined Jan 2015
Total Posts : 37
   Posted 12/9/2015 3:58 PM (GMT -6)   
Not doing too well. Thanks to Orkambi, I lost about 6% of my FEV1 (from 43 to 37%) and about 15% of my FVC within 5 short weeks. Started talking transplant centers with my doc. If I fall too much more I'll need to think about getting listed.
CF DDf508 w/ CFRD (dignosed 3 months) 43 years old, 2 kiddos
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