Is everyone doing ok?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Forum Moderator

Date Joined Feb 2007
Total Posts : 1050
   Posted 11/15/2015 2:54 AM (GMT -7)   
How is everyone, keep us updated :)

Moderator of the Cystic Fibrosis forum

Hey, I'm Gem with CF, age 29 and diagnosed at 2 years old. I'm no expert but having CF myself I've learnt a few things along the way.
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum, Proximal Myositis, Polyarthralgia

Wiley Coyote
Regular Member

Date Joined Jan 2015
Total Posts : 37
   Posted 12/9/2015 2:58 PM (GMT -7)   
Not doing too well. Thanks to Orkambi, I lost about 6% of my FEV1 (from 43 to 37%) and about 15% of my FVC within 5 short weeks. Started talking transplant centers with my doc. If I fall too much more I'll need to think about getting listed.
CF DDf508 w/ CFRD (dignosed 3 months) 43 years old, 2 kiddos
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, February 25, 2018 6:38 PM (GMT -7)
There are a total of 2,933,330 posts in 321,841 threads.
View Active Threads

Who's Online
This forum has 160504 registered members. Please welcome our newest member, wlm18.
393 Guest(s), 18 Registered Member(s) are currently online.  Details
Mak37, Jwal6, Xabian, PeterDisAbelard., TOOTY, jovana, hammer8, Rosesrhealing, Dogdays, AJMan, Garion, Selena Mc, NiceCupOfTea, Manfred, Bacon Girl, Tall Allen, straydog, halbert