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Is everyone doing ok?

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Cystic Fibrosis
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Gemsi
Veteran Member
Joined : Feb 2007
Posts : 1050
Posted 11/15/2015 1:54 AM (GMT -8)
How is everyone, keep us updated :)

Gem
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Wiley Coyote
Regular Member
Joined : Jan 2015
Posts : 37
Posted 12/9/2015 1:58 PM (GMT -8)
Not doing too well. Thanks to Orkambi, I lost about 6% of my FEV1 (from 43 to 37%) and about 15% of my FVC within 5 short weeks. Started talking transplant centers with my doc. If I fall too much more I'll need to think about getting listed.
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