Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Cystic Fibrosis and Sjogrens Syndrome

Support Forums
>
Cystic Fibrosis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
nbvet
New Member
Joined : Apr 2016
Posts : 10
Posted 4/30/2016 9:13 PM (GMT -8)
My wife was diagnosed in 2009 with CF after many Doctors over 10 years said it could not be. She was 66. But it was. By 2009 it had damaged her heart (probably from poor absorption of some vitamins), caused her to lose all her large intestine and had multiple intestinal blockages. Her response to the addition of Creon with everything she ate was dramatic - few blockages, more consistent output in her ileostomy bag and a marked improvement in cardiac output. Her lung function has been moderate throughout.
Recently, following a stick injury to her cornea, she has developed Chronic Corneal Ulcer Syndrome exacerbated by poor tear production. She often has a dry mouth and it is suggested she has Sjogrens Syndrome (SS). Tests so far are inconclusive, ANA is suggestive, ESR is raised as oft in CF but others tests are negative. We are waiting for a Doctor to agree to do a lip biopsy.
Sjogrens is an autoimmune disease often following a viral or other infection. I have only found 1 case of CF & SS but with the chronic inflammation of CF it seems that they may occur together?
Has anyone with CF had experience with SS? What has been your experience?
Tim Blowfield
✚ New Topic ✚ Reply


More On Chronic Illness

How To Help A Loved One With Chronic Illness

How To Help A Loved One With Chronic Illness

Becoming More Resilient In The Face Of Chronic Illness

Becoming More Resilient In The Face Of Chronic Illness


HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
Facebook Twitter Instagram Pinterest LinkedIn
© 1997-2023 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.