Hi there Teehee and welcome to HW.
I agree with you on the live her life as normal as possible. Although, I only treat my boys to the mall or out to eat in the public on fridays, this may help to contribute to them being pretty healthy. They do go to regular school and have since kindergarden and has done fairly well. I spray lysol to help with the germ issue at home. I jump on an issue if I see one arising medically. I quickly determine if it is a virus or a lung involvement. I would rather not take a chance on hospitilization if I don't have to.
I can certainly sympathize with the mom for feeling guilty for working. Bless her heart. It's hard to have a child in the hospital all the time worrying. I have been there and done that!. All CF centers have a resourse person, perhaps she can talk with him/her to help her feel better. I just dealt with our CF Center resource person on school issues. They are so wonderful and can help figure out ways to clear the path so to speak, so, we can move forward with not only our feelings, but, understandings.
Hoping things get better for you all
Kathy, mom to identical twin boys with CF (9yrs), daughter 20, grandaughter 2 1/2, one on the way!
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
Moderator, Cystic Fibrosis. "If there is questionable doubt, check it out"....with your healthcare provider!. We are here to offer support, encouragement, and answer your questions as best we can. Don't hesitate to step on in and enjoy!.