Hi Tricia. I'm 14 and Ive had CF all of my life. I know that it can be VERY scary at some times, but you just got to have faith!! I was diagnosed at 6 months, and my mother went all over the county (and state!) looking for an explanation for my toy football sized feet and my constant crying (and starving) We finally had a sweat test done ( I think it measured like the amount of salt in my sweat) anyway, we had to go to a hospital more than an hour away and get me diagnosed.
I inhale (Nebulize) albuterol 4 times a day, Nebulize Pulmozyme once a day, and Nebulize Tobramyacin once a day (TOBI) I am going into this new year facing a right upper lobectomy in February. Last night I almost cried myself to sleep thinking about all the chest tubes and the pain. But there are others much worse than me.
Just keep the faith and all will be better. Trust me.
I will pray for you !!