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mild cf vs severe cf

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Posted 1/5/2006 11:15 PM (GMT -6)
hello everyone. i know this is prob a stupid entry but ive been doing some thinking. how do you know if your case of cf is mild or severe? i mean if your diagnoised as a a dult does that automatically mean you have a mild case? or is it possible to have a severe case even if your diagnoised so late? if you have a mild case how much longer does that give you to live? i know my sister had a very chronically severe case of cf. but i was to young to understand. And do all cf patients always vomit or is it just me? im so tired of puking my guts out. i cant keep anything down unless its applesauce with my pancreas capsules.  as for liquids, only water stays down. i think its all weird. i think im coming down with another brochitus infection as for i feel like crap today and i just want to sleep but my son isnt allowing that and i have to go to work sat but its gonna be in the 30s here. im not gonna be allow to work much longer so i dont want to call off so i can have a little more money b4 they make me quit. ne ways sorry for making this so long but i was just wondering..about the mild vs severe cf..

 

Posted 1/6/2006 3:44 PM (GMT -6)

I'm so sorry to hear that you feel that way.   I've had CF all of my life (14 yrs) and (in my opinion) have done pretty good. 

I do not throw up but I have to take a significant amout of Pancreatic Enzymes (MT 20s) 4-5 with meals and 3-4 with snacks.  If i forget to take them, I get a terrible stomach ache and cannot leave the house for fear of having an accident.  And if I take to much, I will be really constipated.

I am also on a laundry list of other drugs.  Mostly for my lungs, although, I do take Ranitidine (ZANTAC 75)  and that helps with any extra stomach issues that I may have (Heartburn, Nausia, etc.)

I will be praying for you.  Good Luck.  Email me if you need anything else

Posted 1/15/2006 1:19 PM (GMT -6)
If you are diagnosed with CF as an adult, it does not mean you do not have a serve condition. You could quite easily go down hill very fast. It just means you were lucky and led a pretty normal life until your CF become more of a problem. Each CFer is different some will say they only have Iv’s once a year, where some will say every 3 months. Some are on oxygen other are not. I would also look at what has happened to you with your CF have you ever coughed up blood maybe even vomited it, things like that. Now don’t scared just because I mentioned coughing up blood this is quite a normal thing for people with CF to do. In the later stages of Cf this can happen. Although I personally started coughing up blood when I was 16 I’m now 23 and have a very good understanding of CF. if you have any question please just ask and I’ll do my best to help.
Posted 1/20/2006 11:02 AM (GMT -6)

Well i always cough up some blood but the docs say its just busted blood vessels in my throat from coughing so much and so hard. As for oxygen the docs are thinking about putting me on oxgen only in the morning when i first wake and at night while im sleeping. i cant breath when im asleep. i wake up every morning with a migraine caused from lack of oxygen. they are also talking about getting me a g-tube. i never asked if i had mild or severe cf so i have no idea which i have and im to afraid of asking and finding out. they give me to live til 30 yrs old. i told em watch me live til im 60. what would u say to that if im coming here on my 60th bday. ill prove em wrong. i have a high willpower. so itll help me live longer. i ve lost more weight im now 5'5 1/2 at 102 lbs.

well any help would greatly be appreciated

thanks in advance

faithful

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