I have just turned 19 and I am in my first year of collage. all my life I have been very agressave with my CF, I am just one of those people who if I miss my night treatment I wake up unable to breath in the middle of the night. (I learned very quickly NEVER to skip a treatment) I an at a very gool clinic that leads the way in CF reaserch so I have been lucky to always get the new stuff. I strugle with CF every day and fight for everything I have, and I have a lot! I am now far healthy than I was when I was little, new medications have made all the differance in the world. when I was young my life was run by my CF, in the past few years I have been able to reclame that life to some extent, I finaly have energy to go out with my friends and I am making it 3 months between hospitalizations, I love life! my problem? I feel I am losing that controle. Collage is taking it's tole on my lealth, I am finding that after class I go home and take a 2 hour nap, then study, by the time I am done I am to exosted to go out with frineds, so I do treatments and go to bed. I am in a tech school, the program I am in is a 2 year program and I am only halfway through the first semester! I am thinking about
taking 3 years to compleet the program and only go to school part time. would that make my life easer or just prolong my agany? am I getting sicker because of stress from school or because my CF is progressing? I am counting down the days untill spring break, and not because I can go outside and be with friends, but because I can go into the hospital! I am excited as anyone else in my class about
break, but they think I should be upset about
going to the hospital, I can't make them understand that I just feel crappy. I go to school with a cough and having trouble breathing, my friends all tell me to go home, how can I make them understand that I can't stop living my life simply because I am having trouble breathing, not only would I never go anywhere, but I would fail out of school! I think that it is just one of those things that you don't truly understand untill you have to live it, but do any of you have any sugestions on helping my classmates to understand?
thanks for your help