Hi Ladies and Welcome To HW CF Room,
Sorry, I have been away from the board, my daughter had a baby and she has had me tied up with her, not that I didn't want to be....hehehehehhe. We have a new baby boy addition to our family. Grandma is soooooo proud!.
I can feel your frustrations in your posts and trust me, things will get better with time. The hump seems like a endless dream right now, but, it will not take that long. It was a blessing when my twin boys started taking their enzymes, it was like a miracle. Yes....enzymes will be taken for the rest of their life so prepare yourself and your child for whats the easiest and the best way to give them. I do want to let you know that when your baby is treated at a CF Center, they have so much criticial information and some great therapist and counselors that can help answer any questions you have to ease your mind. They have a social worker that is a huge help for times like these when your feeling down. They also help to steer you in the right direction financially. What a blessing they are and all CF parents need them.
I'm sorry, but tonight, I am on a limited time but will be online tomorrow to see how things are going with you all.
Kathy, mom to identical twin boys with CF (9yrs), daughter 20, grandaughter 2 1/2, one on the way!
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
Moderator, Cystic Fibrosis. "If there is questionable doubt, check it out"....with your healthcare provider!. We are here to offer support, encouragement, and answer your questions as best we can. Don't hesitate to step on in and enjoy!.