shannin75 my daughter was born and diagnosed with CF at about
2 weeks old. She is now a little over a month old. Our cf specialist team has her on a vitamin supplement and enzymes. Best suggestions:
Problem:The vitamins stain clothes, don't taste good, make her gag.
Solution: Let your son suck out of the dropper until it is gone. It will cause less being spilled on clothes and cut down on gagging.
Problem: Giving the enzyme can be a pain.
Solution: Give the enzyme with a little applesauce. Then once done rinse his mouth with water to get all the enzymes out. This will help prevent sores in the mouth and on your breasts is you breastfeed.
Problem: Sores from taking the enzymes.
SolutioN: Use Utter Cream or Budreau's Butt Paste instead of balmex or desitin. They will work to prevent sores.
Every case of CF is different.
Emotionally this can be draining and hard not only on you, but on your whole family. It helps talking to other families.
If you have other questions let me know. I will try and answer them.