Hi Max's Mom, Welcome to HW CF Room.
We hope you find comfort here on HW. I certainly can sympathize with your feelings right now. I have twins with CF. Double whammo! The first 3 yrs, with both being in critical shape it was very hard on me, but, I survived! and you can too!. We as parents all have set backs, but, someone seems to come along (in my case when I am feeling down) that has a disease or handicap that is extremely worse than my twins. At that moment, my overwhelming sad feelings seem to go away for that moment.
My suggestion to you is: I assume your newly pregant? by the time your new baby comes along, you will be well on your way to being an experienced CF Mom. Don't fret! it won't be hard as having two diagnosed at the same time. Since my twins advance at the same rate with this disease, they develop being sick at the same time. It's possible that you can have only one sick at a time due to the age differences and this will help you quite alot in terms of treatments and regimine...etc.
If you have any specific questions, feel free to ask. Someone will have a helpful answer, suggestion, a comforting hug.
Please do skip on over to the thread: Sound Off: CF Member Room and add your info. Someone will learn something about you and your family. You will learn about the folks we have here on HW who are affected by CF.
Here's a shoulder to lean on, and a comforting hug (((((((Max's Mom))))))))
Addition to my post: Right now, you are in "overdrive" trying to research and learn as much as you can about CF. Please, do, take some time for YOU and YOUR BABY! This can wear you down if your not careful. Let your husband be your health manager while you research and learn. Have him keep an eye on you that your eating and taking care of yourself because if your baby has it, the baby needs alot more nutrients right now to help it gain weight. You can get overwhelmed by the vast amount of information, please be careful.
Kathy, mom to identical twin boys with CF (10 yrs), daughter 21, grandaughter 3, Newborn grandson
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
Moderator, Cystic Fibrosis. "If there is questionable doubt, check it out"....with your healthcare provider!. We are here to offer support, encouragement, a shoulder to lean on, and answer your questions as best we can. Don't hesitate to step on in and enjoy and remember! "Never give up hope for a cure" one day we will get there!".
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Post Edited (Twinstride) : 4/30/2006 4:26:08 PM (GMT-6)