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another doc apt more bad news

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Cystic Fibrosis
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faithful83
Regular Member
Joined : Jan 2006
Posts : 47
Posted 5/1/2006 6:48 PM (GMT -8)
Well today i had another doc apt with my GI doctor. I just discovered i have GERD, CFRD,and surgery within a fews months from inhernia from coughing so much. since i have a chronic cough due to my Cf part of my stomach lining is seperated which is causing me a great amount of pain on my left pelvis.surgery scares me. my pfts r also down from 95% to 89% which is the worst for me yet. as well my vitamins are going low again so im not on 2 diff types of vitamins multivitamins of course. its never gonna end and im never gonna stop fighting. i am so tired medicine tho. i take 36 enymes a day, prevacid,reglan,zantac, zelnorm,a cough medicine with codine in it,betyl,duoneb,alburtol,the list goes on..errrrr..i wish this would stop and i start improving not getting worse. but my doc says its part of the disease. i will alway get worse. cf is to progressive and i dont have a mild case. i see there are some new ppl here with possiblities of their kids having cf, i wish u the best and i pray for the best. the one good thing bout being so ill is..my doc said anytime someone is as ill as a CFer they have a enormous heart. i dont think i do but i do care for everyone. i love life and i love ppl. even tho i dont like talking to ppl in general bout my medical problems, i dont want ne one to feel sorry for me ya no or to run from being scared. i have my days were im down and depressed but overall i think mentally i do pretty good.

Good luck to everyone

Tricia

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imondeck
Regular Member
Joined : Apr 2006
Posts : 105
Posted 5/4/2006 6:32 AM (GMT -8)
Tricia, hope you are feeling better.

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Twinstride
Regular Member
Joined : Sep 2005
Posts : 318
Posted 5/4/2006 6:02 PM (GMT -8)
Tricia....you give us inspiration!.

Just thought I would let you know this.

Hugs!
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