i know i havent written awhile again but its been such a stupid stressful year and im sooooo about
to give up. let whatever happens happen..Well about
15 yrs ago i had a aunt With Cf however, they didnt dxed her cuz of her age until about
4 days before she passed. they took her off oxygen and all. they said she was only a carrier at first, Well they did a gentic test on her 2 weeks b4 she passed and 4 days before it came back with 2 diff kinds of genes..one was the delta..i dont remember the other one..anyhow..Today i get a call from my doctors..ok rememeber i was dxed with cf at one time Well today they said i am a carrier instead of having cf i just have the symptoms..umm huh? wtf? how is it possible to be "just a carrier" and have, GERD,Chronic pancritis( i dont know how to spell it), pancreatic insuffiency,Asthma, recurrent brochitus infections,recurrent sinus infections,2 sweat test results:58 and 38,ive went from 145 lbs to 104 lbs within 3 months, i dont get hungry, i have stomach pains every single day, im on like atleast 50 pills a day..but yet im only a carrier..omg..im soooooooooo confused..so i guess its gonna be ok to stop taking my meds right? i dont have it im susposed to be a healthy 22 yr old with symptoms of Cf but yet not have the disease..ok ok 0k..trust me i dont want the disease..but i dont wanna end up dead like my aunt either...now if you talk to my stomach doctor he is 100% sure i have the disease..im lost..can ne one make sense of this??i dont wanna stop everything and be like my sister n aunt and be dead..i have a 2 yr old to take care..here in florida medicaid which is what im on dont cover for the ambry test..Can someone help try to make some sense of this stupid crap..i dont know how much more stress..testing, i can take..im fed up with all the doctors here. someone told me its prob cuz im 22 so im not gonna bring as much money to them cuz im not a child ne more..whatever im still young..i mean hello..im not 40 just having symptoms and if they r right im taking em to court,,thats a bunch of bs..Sorry for venting but im lost,confused,aggervated,and fed up with all this stuff yano.. im losin sleep i have no appeitite now from all of this going on and everything i read says..carriers are symptomless..