whats it like?

hello, i know its been a while since i posted, i been very and i mean very sick lately. something i been hearing a lot from people have been making me think a lot. people been asking me whats it like to have cf. i never know what to say besides i live life to the fullest i can or able to everyday and i try to hide all the sad feelings i have. so what i have done is wrote a song/poem. i was hoping to get some feedback on it before i publish it. so here it is

okay, I cryed while reading your poem. mostly because it looks so silimer to poetry I have written. there is nothing like telling somone you have CF, and the only thing they ask is "when are you going to die?" people do ask how it feels, but there are so many differend levels to living with CF. fist is the pain, sometimes you lungs hurt, lungs colaps, I have bad intestines, and they like to randomly stop, causes great pain, I have scienus problems, and diabeties, liver disease, everything that goes with it. it hurts. but then there is the emotion, the guilt of not being the child your parents thought they were going to have, taking time and attention away from your sibilings, haveing to spend so much time in the hospital, not commiting to anything because you don't know if you will get sick. and then there is haveing friends with CF, watching them die all around you, and leaveing you, still here doing farly well. how can you take all that and make a "normal" person understand any of it? that is somthing I have been strugling with, but just as hard for them to understand our is for us to understand their lifes. to go to bed knowing that you will wake up well and happy in the morning, for your bigest problem to be weather or not you should break up with your boyfriend, or what movie to see tonight.
maybe some day I will get the courage to post my poetry here, but for now, it is just mine.

I know exactly how you feel. I have CF too, and a few people have said some pretty horrible things to me. I'd just like them to be in our shoes and see how they like it.

  I cried when I read that. I often feel the same way even though im only 13 i find myself wondering if i will be able to achieve my dream of being a docter.

I know exactly how you feel aswell, made me cry too. It's weird how you can't really explain how it feels to live with cf to someone who doesn't have it, they'll never know how it feels.