Hi all - Thursday my 3 year old had a sweat test done with a positive result, so they did another one on her other arm. Positive as well. Now the pediatrician tells us to "disregard" these results and we will see a specialist on Monday who "does these test all the time" so we can rely on that result.
I would be happy to disregard the positive result, believe me. My child does not have any respiratory symptoms, other than frequent and hard-to-get-rid-of ear infections. She has strong GI symptoms - grease floating in toilet water, distended abdomen since birth, weight gain has slowed, starving and eating all the time. Our state does not currently test for CF as part of its newborn screenings.
Is it possible to have CF without respiratory symptoms? We are having a hard time waiting until Monday to know "for sure". I feel better just posting. Thanks, and God Bless all of you that are living with this disease.