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Looking For People With CF Babies

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Cystic Fibrosis
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Posted 9/1/2006 2:35 PM (GMT -8)
hello

 

i am a single mom of a baby girl who was diagnosed with cf at two weeks old we spent the first 6 months in hospital and i was just looking for someone to talk to and ask question so i could maybe get some answers.

Posted 9/1/2006 8:03 PM (GMT -8)
hello, my name is Jenna, I am 19 years old, I also have been verry sick from CF since the time I was born. you are welcome to talk to me any time you want, I know alot about CF, and all the different treatments. I am in the hospital for 2 weeks every 2-3 months, and have figurd out how to have a life as well, I am in my second year of college right now.
I don't check this site very often, but you can always email me at galvin_jenna@hotmail.com.
hope to talk to you soon
Jenna
Posted 9/1/2006 11:53 PM (GMT -8)
Hi,  My grand-daughter was diagnosed at 6 weeks old because of failure to thrive.  She had pneumonia at 4 weeks old and was in hospital for about 5 weeks.  Being in hospital for so long must have been really hard for you.  Have you got family near to help you?

Posted 9/2/2006 5:40 AM (GMT -8)

Hello Butterfly_eyes and welcome to HW!   Feel free to ask questions galore, there will be someone here to help you out.  Do you have a support system (family members)? 

Here is a great site that has a plethora of information that I found very helpful when I needed some answers (just copy/paste the url in your browser):

http://www3.nbnet.nb.ca/normap/CF.htm

Posted 9/5/2006 12:53 PM (GMT -8)
Hello-welcome and may I add that you have come to the right place for conversation, understanding, and answers to your questions. Both of my children have CF and are at opposite ends of symptoms and severity. I will be happy to talk to you anytime you feel the need
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