I was browsing through some recent posts on here and I was surprised to find some people were older children, teenagers and even senior citizens before being diagnosed with cf.
My daughter Rachael was recommended for a cf sweat test due to "failure to thrive"
She was born at a healthy weight, 8lbs and 5 oz and stayed around 50th percentile until one year old at which point she pretty much stalled out and fell off the charts. She's about to turn 3 now and her weight is 10%ile at 25 pounds and her height is like negative 15%ile at 36 inches tall. Anyway I told the doctor then that the test would not be necessary because in my pregnancy I was tested for carrying the gene for cf and the test was negative, but then her ped. said those tests in pregnancy only check for the most common mutations and not less commmon ones.
Eventually though a higher doctor than her ped (her ped was a resident) said that the test wouldn't really be necessary since I was negative on my carrier test.
I guess it's just one of those things you always wonder. At the time I passed it off because I really thought I would definitely *know* if she had it because I have a friend with cf and she is very very ill, she's on antibiotics like 75% of the time and has to do breathing treatments every day and has oxygen tubes in her 100% of the time especially at night its high oxygen content and is not allowed to be around people most of the time...but I found on here people a lot more healthy than her with the same illness so I guess it makes me wonder?
Is failure to thrive in and of itself a symptom of cf? Are there others I could look for? I doubt the dr would give another order for the sweat test now just because I got worried. thanks for all your replies
Diagnosed May 2006 w/severe UC
10 mg prednisone, tapering
2 400mg Asacol 3X day
1 Benadryl before bed
In remission since July 2006