My Child's Tests

I was curious because her one the doctors say she has been ruled out by 90% because she does not test positive in the 32, but another says that is not mecessarily so because 1) of her symptoms and 2) because there are more than a 1000 mutations and most do not have a "test" for them.  Thank you for your reply.

Hello.  Make sure your daughter is seeing a doctor that is familiar with CF and or affliated/accredited with/to a CF center.

I was told there are over 1500 mutations, with more being discovered every day.  I would give the sweat test another go (at an accredited center).

Did your daughter have a fecal fat/elastase test done yet?

Hang in there and hope you get some answers soon,  It is very frustrating not knowing what is wrong with your child.

Hugs.