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pain

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Cystic Fibrosis
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JaniceH
New Member
Joined : Oct 2006
Posts : 2
Posted 10/17/2006 9:13 PM (GMT -6)
Does anyone else have very bad pain with this mine is unbearable at times the pain med just does not seem to help sometimes i also have to take xanax for nerves or I could not bear it.
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Shire5k
New Member
Joined : Oct 2006
Posts : 10
Posted 10/18/2006 12:49 PM (GMT -6)
What kind of pain?
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mandymulay
New Member
Joined : Jul 2007
Posts : 6
Posted 7/20/2007 8:08 PM (GMT -6)
I have chronch pain and stiff ness in my joints and back. I get anxiety also.
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DanielleGross
New Member
Joined : Oct 2009
Posts : 1
Posted 10/25/2009 4:51 PM (GMT -6)
I feel like I'm always in pain. Actually the only time I feel I can function like a normal person is when I'm on pain meds. I think my doctors think I have 'drug seeking behavior.' But I honestly think we've lived our whole lives in pain and we're accustomed to it.

I've been reading a lot lately about cf and chronic pain. Most of what I've read supports my theory. But there no studies to link the two. I've also read a lot about doctors not listening to cf's complaints of chronic pain. So I guess I'm not the only one feeling misunderstood.
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