Hi Ann. I'm new here too.
My 6yr old has had respitory problems since he was 6 weeks old. After his 2nd bout of being hospitalized for pneumonia in 7mths this year, his pedi dr referred us to Dallas' Children's Medical Center. We've been to the asthma/allergy/immunology, ent, and infectious disesase clinics. The ENT specialist is having us do a wait and see to see if we are taking his tonsils out. He had strep throat 4 times last year and once already this year. We go back there in March. The asthma clinic monitors his condition and we go back there in February. He also has a heart murmur which the cardiologist says is innocent and not a problem.
Garon's pedi dr had already run the full battery of blood tests to test his immune system before he refereed to Children's. All results were negative. He had also done the blood test for CF which was negative. The asthma clinic did a full allergy test and everything came back negative too. We also had s inus CT scan which came back negative too. Now, the infectious disease clinic is doing a full battery of other blood tests, including the immunlogy test again, along with others. They say he may just have sticky lungs and his 7 bouts of pneumonia may not be true pneumonia, just his lungs not fully inflating (not sure if that makes sense). He was healthy at his last visit so they did a chest x-ray to compare to when he is sick. (just a sidenote: he's had so many chest xrays that he discusses them with the techs). Anyway, they did the sweat test on Dec 20 and we are waiting for the results. The holidays have really messed up getting the results.
garon had trouble when he was a baby. We used the lactose free formula after several tries. When we added cereal and bananas he would get severe diaherrea, His dr at that timre said it was a stomach virus so we took him off cereal and bananas. As soon as we gave him them again he would get the diaherrea again. It took us 7mths to figure out he couldn't tolerate bananas. When he was in the hospital in April, he developed a large blister on his arm under the IV tape. The asthma clinic tested for a latex allergy which was negative too. GEEEZZ!! They did say that even if it is negative he could still have a local reaction.
Yesterday, I took the kids to the dentist for their checkups. She said he needed some work done but that with his medical history they couldn't handle it so we will be going to the dental clinic at Children's.
Ann, I'm sorry to vent my worries and take away from your worries. I guess what I am trying to say is that I can understand and worry along with you about our babies (I know they aren't babies but to us they are, right?)
Like the others have posted, I would really push for the sweat test.