I have just found this website and I could really use some advice. I am concerned that I may have Cystic Fibrosis which has been misdiagnosed as Asthma.
I am 29 years old and have suffered with Lung problems for most of my life. I have always been very small build and was only 4 stone until my early teens, but more worryingly, I have had pneumonia at least three times (probarbly more) - the first time at three years old. There are lung problems on my fathers side, but as my mother is adopted, we have no idea what history her family may have.
I was diagnosed with Asthma at four, but have suffered from re-occurring infections about 4/5 times a year since then always requiring large doses of antibiotics. From the age of 9, this escalated to steriods and then hospital admissions. I have been in hospital more than 20 times.
I have seen consultants for Asthma and nothing has ever been suggested to the contrary. However other symptoms include constant thick yellow catargh (with a bad taste and smell) bowel problems (constipation and large painful stools), nausea and lack of appetite and an occasionally salty taste in the mouth. My toes are also a bit rounded (I have just read that this could be a sign)
For the past 6 years, I have had a chest infection every few weeks and the gap has closed to requiring large doses of antibiotics and steriods monthly. I have had chest xrays but never a CF test. The doctors usually comment that the white blood count is high and just write out a prescription.
I take a large dose of asthma inhalers daily, but unlike most asthmatics do not actually have attacks - I only get ill when I have an infection. I don't have an attack if I mix with animals, flowers or any usual triggers (although I do have allergies). I have a home nebuliser, and during one of these spells it does help - as by this stage the inhalers don't.
I am embarrased to ask my doctor as they seem to have very little time for me and the Asthma nurse is never there. I just know I need to get this sorted.