My name is Emily, I am 17 years old, and I've known about my CF since I was 2. I'm probably not a very good story to tell; I mean I've never really had much of a problem with my CF until now. I've always been very healthy and the only time I've ever been in the hospital for it was when I was 2 and they first found out about my CF (though there were 3 close calls last year). Living with it is still hard though; while I'm not sick enough to be hospitalized i pretty much catch everything that goes around, and I am constantly with a cough or something. All of this made my freshman year at high school very difficult for me, and I missed a total of about 80 days last year. P.E wasn't too bad though, I took aerobics and a fitness class and had a deal with the teachers that if I was having a bad day, or week where I couldn't participate, I'd just make it up another way. That helped a lot. It was very hard for me socially, when you're gone all the time, it's hard to keep any kind of friendships because you miss so much; not to mention the whole CF thing really tends to put people off. Now I am homeschooled and doing better.
I love to do outside activities! For the past 5 years I've been volunteering at a horse rescue and retirement; and for about 6 years I have been very involved in horseback riding, camping, backpacking, hiking, kayaking (and all other kinds of boating), spelunking, and even a bit of rock climbing. Even though my CF doesn't run my life, it sure does have a nasty habit of getting in the way sometimes! Doing all the things I love to do can be very hard with CF; when I get sick, it's hard for me to even walk up a flight of stairs without chest pains and wheezing and coughing! It's obnoxious!
Right now, my main form of treatments are the Vest, and the new Saline inhaling thing (absolutely disgusting! but it definitely starts you coughing and bringing stuff up). I have albuterol which I need to use before most physical activity.
Like I said, my CF was always fine, but lately I've been getting sick more often (like now). I do my vest treatment once a day, and the saline one twice. Last summer, I got so incredibly sick once, for 3 weeks when I was in the San Juan Islands, that my doctors would have admitted me were I home. I mean, I couldn't do anything! I was constantly tight chested and wheezing, trying to lay down sent me into caoughing fits, and walking 20 feet had me breathing heavily and more wheezing. It was definitely the most sick I had ever been (not counting the time at 2). I hope not to repeat the experience for quite a while!
I'm sorry, I'm not really sure what kind of stuff you wanted to know. So if you have any more questions, feel free to ask!
We are the ones, we get knocked down; we get back up and stand above the crowd. We are one.