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do you ever skip treatments??

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Cystic Fibrosis
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Posted 3/28/2007 10:03 AM (GMT -8)
i was just wondering if, every once in a while, you just don't feel like doing your treatments.  be it the neb or the vest, or whatever other contraptions you may have.  i would rather take a nap sometimes, but i always feel guilty.  and i should because skipping treatments obviously is not a good thing, in the least.  so...do any of you ever skip?  yeah (<--is this thing thrusting?? hahaha)
Posted 3/29/2007 12:59 AM (GMT -8)
Occasionally I do.
At the minute I'm in the process of nebusliser skipping. The reason is, is I have a Profile INeb, and can't quite manage a full breath in or out at the minute, without having a coughing fit.
I also have a habit of skipping treatments when I'm depressed, as at that time, I some how know better than the doctor's and believe there acually trying to poison me (and,with the amount of side effects I get, that could be so:P)

It's obviously not good for you, but sometimes you just need a bit of a break from CF and relying on medication. I also end up feeling very guilty, as the CF team do so much for me. It sometimes feels as if I'm spitting on there hard work. Especially with my neb at the mo. I'dnot missed a single dose in over 3 weeks, which is a record for me. But have now had to miss 4 days in a row. That's 8 doses! I know when my physio downloads the info from it I'mgonna be all shame faced and stuff.
Posted 3/29/2007 3:10 AM (GMT -8)
Hey diedre... if thats how you spell it haha sorry if it isn't :P. Sometimes I do, not usually though because I know what happens if I don't do it... But if I'm sleeping at a mates place or I'm going to school camp or something then I won't do it on purpose... for obvious reasons :)
and yes I think that thing is thrusting
haha catch you later
Posted 4/1/2007 6:45 AM (GMT -8)
My son occasionally misses his treatments when he is just plain tired or has had a full day.  We try to keep a plan of completing at least 80 percent of his treatments per week.

Posted 4/2/2007 11:35 AM (GMT -8)
Nope. Rain, shine, sleet or hail I always have my treatments. Doesnt matter if I'm 3/4 dead with an infection. I do it anyway. Had surgery in Dec, couldn't vest so I began doing my own variation of Autogenic drainage instead to keep me as clear as possible. (its like the real one only not taught by someone so I dont know for sure if I do it right or not, but it sure does bring up the crap!).

The way it was explained to me: Doing treatments is going to keep you in the BEST possible shape for the longest time until there's a cure. No treatments = scarring, infections etc, which will shorten lifespan considerably AND when the cure's finally available I want to be in good shape to start my "new life". Not getting a lame start because I didnt take care of my body when I had the chance to. (Parents please feel free to pass that along!). Skipping is just not an option IMHO.
Posted 5/2/2007 1:34 AM (GMT -8)
I don't think there is a CFer in this world who can honestly say that never in their life have they ever skipped a treatment. that being said, I DO NOT make a habbet out of it. I used to skip treatments from time to time right after I got out of a hospitilization, I was feeling so good... and there are times that you have had a very long day, and all you can think about is your bed, I would skip on those nights as well. you over sleep your alarm in the morning and just don't have time. recently however I CAN NOT skip treatments anytime. if I don't do a treatment at night sometime around 1am I am waking up choking and coughing and can't breath untill I do my treatment, skipping morning treatments just means that I can't make it to lunch without collapsing on the floor in a coughing fit. sometimes I do a third treatment in the middle of the day as well. I don't think I have ever skipped treatmetns more than twice in one month, however for the past year or so, I have been doing as many as I can. I miss the days when I could skipp them from time to time, but at this point I feel mostly okay as long as I have done them, and I keep doing them so that I can continue to feel okay for as long as I can. CF is an uphill battle, treatments don't make it go away, but they do slow it down. make it go as slow as you can, or one day you will find yourself sitting in a hospital bed wondering why you couldn't have just done your treatments when you felt good.
Posted 6/6/2007 7:24 PM (GMT -8)

I have skipped my treatments more times than I can count, but now I take it very seriously. sometimes we just like to feel normal and skip a few, nothing wrong with wanting to feel like everyone else. its seems to be very time comsuming, but in the long run its worth it, you wont feel any worse doing it

Posted 6/6/2007 10:45 PM (GMT -8)
I am a horrible example of a responsible cfer. I never do my treatments, which has been fine for the past 10 years. But now, at 17, I just got my yearly chest x-rays, and I have brand new lung scarring, and signs of Bronchiectasis, which has my doctors really worried. Not to mention I just keep getting sick over and over! Totally new for me!

 

So, learn from my mistakes, and do your treatments! Otherwise it'll come right back and bite ya in the butt!

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