do you ever skip treatments??

Occasionally I do.
At the minute I'm in the process of nebusliser skipping. The reason is, is I have a Profile INeb, and can't quite manage a full breath in or out at the minute, without having a coughing fit.
I also have a habit of skipping treatments when I'm depressed, as at that time, I some how know better than the doctor's and believe there acually trying to poison me (and,with the amount of side effects I get, that could be so:P)

It's obviously not good for you, but sometimes you just need a bit of a break from CF and relying on medication. I also end up feeling very guilty, as the CF team do so much for me. It sometimes feels as if I'm spitting on there hard work. Especially with my neb at the mo. I'dnot missed a single dose in over 3 weeks, which is a record for me. But have now had to miss 4 days in a row. That's 8 doses! I know when my physio downloads the info from it I'mgonna be all shame faced and stuff.

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It's true!: Smile and the whole world smiles with you. Frown and the world turns upside down.

 Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.

 Allergies: Any dressing except Mepilex border. Even plasters make my skin blister. Hayfever, Tazocin, Tobromycin, Ibruprofen, Asprin, Codeine, Mirtazapine.

I have a pretty little port-a-cath on left side of chest wall

My son occasionally misses his treatments when he is just plain tired or has had a full day.  We try to keep a plan of completing at least 80 percent of his treatments per week.

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Sandra

"Measure your life by loss not gain, not by the wine drunk but by the wine poured, for love's strength stands in love's sacrifice and he who suffers most has much to give" -Goforth

 

Cystic Fibrosis Co-Mod

I don't think there is a CFer in this world who can honestly say that never in their life have they ever skipped a treatment. that being said, I DO NOT make a habbet out of it. I used to skip treatments from time to time right after I got out of a hospitilization, I was feeling so good... and there are times that you have had a very long day, and all you can think about is your bed, I would skip on those nights as well. you over sleep your alarm in the morning and just don't have time. recently however I CAN NOT skip treatments anytime. if I don't do a treatment at night sometime around 1am I am waking up choking and coughing and can't breath untill I do my treatment, skipping morning treatments just means that I can't make it to lunch without collapsing on the floor in a coughing fit. sometimes I do a third treatment in the middle of the day as well. I don't think I have ever skipped treatmetns more than twice in one month, however for the past year or so, I have been doing as many as I can. I miss the days when I could skipp them from time to time, but at this point I feel mostly okay as long as I have done them, and I keep doing them so that I can continue to feel okay for as long as I can. CF is an uphill battle, treatments don't make it go away, but they do slow it down. make it go as slow as you can, or one day you will find yourself sitting in a hospital bed wondering why you couldn't have just done your treatments when you felt good.

I am a horrible example of a responsible cfer. I never do my treatments, which has been fine for the past 10 years. But now, at 17, I just got my yearly chest x-rays, and I have brand new lung scarring, and signs of Bronchiectasis, which has my doctors really worried. Not to mention I just keep getting sick over and over! Totally new for me!

 

So, learn from my mistakes, and do your treatments! Otherwise it'll come right back and bite ya in the butt!

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