Introduce Myself

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New Member

Date Joined Apr 2007
Total Posts : 3
   Posted 4/1/2007 3:39 AM (GMT -7)   
Hi every one.
I haven't been here for over a year so im guessing it's full of different people so i will re-introduce myself.
My name is Neely I'm from Western Australia i have 4 brothers with out CF 1 is older the other 3 are younger, the youngest young enough to be mine he is 3 and soo cute. Im 22 till May any ways, i am the only person in my whole extended family with Cf, i also have Cfrd and oestioperosis  (how ever it is spelt) I was diag at 5 yrs old.
I was born in england (luton) and moved here due to being diag at PMH over here and being told this is a better climate for my health, so it was back home to pack the house up and say bye-bye to all the family. A few years my grandad decided to join us down under, but the rest of the family just ring and write.
My parents seperated when i was 13 (Hense the age gap between my baby brother and youngest minus him is 12yrs) I love my mum and we are very close my dad and i have a rocky relationship but we are both grown up enough to accept things the way they are.
I live with my boyfriend Tyrone we have been together for 4 years.
I think that is enough of a run-down of my life for now. 
I'ld love to chat to any one who is intrested. Looking forward to meeting you all.
any one who isn't stir crazy or stalkerish and wants to add me to msn or email they can.
x x x

Regular Member

Date Joined Apr 2006
Total Posts : 105
   Posted 4/1/2007 7:39 AM (GMT -7)   

Hello Neely and welcome back!

Sounds like you have a life full of wonderful and special people! :-)

"Measure your life by loss not gain, not by the wine drunk but by the wine poured, for love's strength stands in love's sacrifice and he who suffers most has much to give" -Goforth
Cystic Fibrosis Co-Mod

Regular Member

Date Joined Mar 2007
Total Posts : 35
   Posted 4/10/2007 11:29 PM (GMT -7)   
hello, neely!  good to meet you.  i'm a new member, as you can probably tell by the info under my name.  well, my real name's deirdre, and i'll be 19 next week (woohoo!!!).  that really is quite a run-down of your life.  i'm from the U.S. and i've been here all my life.  i'm just about to finish my first year of college, and i'm just trying to figure things out at this point, in terms of my education and life in general.  i've been living diagnosed with cf for about two years now.  i only have a mild case, but it can be difficult, nonetheless.  anyway...i guess i haven't too much to say right i'll just leave it at that.  and, like i said before, good to meet you!!

New Member

Date Joined Oct 2004
Total Posts : 14
   Posted 4/15/2007 4:33 AM (GMT -7)   
Hey Neely
What age were you when you moved to Australia? I would love to move to Aussie but have been told that there is no way i would get my health care covered. I'm living in Ireland where all my meds and health care is covered. How does this work for you in Australia?You mentioned that you moved to Australia "due to being diag at PMH over here and being told this is a better climate for my health" what is PMH and do you find that the climate is beneficial? The damp and almost constant rain over here is not the best climate! I am thinking of moving to south west of England where climate and standard of health care is better. How do you find the health care over there for you?

New Member

Date Joined Apr 2007
Total Posts : 3
   Posted 4/25/2007 2:18 AM (GMT -7)   
PMH is the childrens hospital here in perth.
I don't really pay for any thing here it is all under medicare and DSP (disability pension) wich intitles you to PBS (perscription benifits scheme), so i pay just $4.90 for each perscription and we have a thing called a net here it lasts a year and once it is full you don't have to pay for any more scripts that year i think it covers about 56 pbs $274.40 and the saftey theshold is $1059.00 so it all works out well.
Mum and Dad thought they would have trouble getting me citizenship here but as my Dad was Austrailian born (on my grand parents holiday - in theroy proved that every thing happens for a reason) i was automatically granted citizenship as was my brother we now have duel nationaliaty. I was 5 when i was diagnosed and moved. 
The weather here is good i guess for my health but i can't really compare it because i have never lived as a CF treated patient out side Australia. But as i guess all country's do and CF's do you have your up and downs. We are thinking of moving closer to the beach for the salty air that is a benifit to health when thinking of places to live.
Sorry i have terrible spelling hope that all makes sense.
x x x

Neely x x x
22 years old / Cf, CFRD.
A Devoted daughter, Sister, Friend, Girl-friend.

New Member

Date Joined Oct 2006
Total Posts : 12
   Posted 5/1/2007 6:19 AM (GMT -7)   

hi Neely - great to here your story, sounds like you have a fab family and loads of support.  Couldnt help notice you come from my town of Luton - but hey i know where id rather be!!!!

Hope your well.



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