Went to my CF unit the other day.
I've got 2 weeks to get my Lung Function back up by about 10%, or there looking at giving me IV's again.
I seem to either have a viral or bacterial infection, or possibly both combined. They reckon I do also have a touch of ABPA thrown in. Waiting till next week to decide on how good steroids will be for my muscular dystrophy thing. Hope I can go on them, as then hopefully I'll start putting back on the weight I keep losing.
Just to add to my worry, they've also started me on Tobi nebuliser. Not only does it make me want to hurl, and give me a sore throat and runny nose. It also decreases my lung function by another 10%. So, right now, I'm more breathless than usual, as I'm runnng on 20% less lung funcion than usual.
They've also started be on serevent inhalor, and got rid of my seretide, as I was useless at taking it. They started me on hayfever tablets and Cirpofloxacin oral antibiotic.
I'm so annoyed, as they only had me in about a month ago for IV's and they sent me home after 8 days because there weren't enough beds. It's probably the 8 days worth of antibiotics that's helped the infection along in the first place. IV's knock my immune system down for the first 7 days, but then I start to pick up and am brilliant by the end of a full 2 weeks course.
Just to really take the biscuit and rub it in. I currently can't go up to my mum's as my sister has chicken pox. Which I don't want to risk when I seem to be getting every cold and infection under the sun.
Really wound up at my body again, it seems to be pretty useless as of late. With the excercise ban I've got going on, I'm weakning more by the week.
I would just like to place a prescription, for a huge dose of normality please, with a touch of sanity thrown in, and maybe a cute doctor;).
Hope everyone else is doing well, and not getting TOO confused with the silly weather if you live in England.