We do have specialist CF clinics over here. The clinics are completely cut off. You're led to a single room and everyone comes into see you like doctor, nurse, physiotherapist, dietician. You can only have clinic days on specific days, where everyone in on that day has your bug. You're only allowed upto the clinic on any other day of the week, if it's an emergancy.
If there is someone in clinic who doesn't have your bugs, then you have to use an alternate entrance so you're not even passing by their room.
After one person with CF leaves a room, all surfaces and chairs have to be wiped with alcohol rub and left to settle for half an hour before another person with CF can enter that room.
On the ward is a different story entirley. We're not supposed to mix, but do as soon as the CF team leave the ward. But only if we're carrying the same bugs. I have a few friends who carry the Liverpool strain of Psuedomonas same as me, they're the people I've known since childhood. But not everyone does. I won't mix with people who can't tell me what bugs they have.
We share 1 bathroom and 1 toilet, unless you get one of the special rooms that are onsuit. But those rooms are disgusting in other ways, in that they have a bad habit of flooding out with sewage when the pipes block up.
We each have a room, to keep us protected from the elderly patients on the ward, and too keep them protected from us.......We're young, we get bored easily lol, laptops, music and TV and maybe a games console we take in to stop the boredom.
We did share a kitchen on the ward, but I think that might have been closed down, I'm not sure as I had my last lot of IV's at home.
We're soon getting a proper CF ward built, with all new stuff. Sounds good, but I can imagine room confinement actually coming into full force........They best make the room nice too stay in. :P
Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Tramadol, Nefopam, Ursodeoxycholic Acid, Trazodone, Slow-Sodium, Azithromycin, Metachlopromide, Omeprazole, Tobi Ineb, Fresubin Liquid Feed, Skandishakes. I use PEP device as my physio.
Had a Port-a-cath fitted on chest wall since Nov 04
Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.