Help Me Raise Awareness For CF Sufferers

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mark40

New Member

Joined : Jul 2007

Posts : 1

Posted 7/6/2007 2:44 AM (GMT -7)

Hi Everyone.

My 8 year old niece has cystic fibrosis & has not been very well lately, so I created a website for her to try to cheer her up & at the same time raise awareness for CF sufferers, basically she is trying to collect as many Hi’s as she can & raise public profile to this illness, its free.

http://www.yasmincf.com

Thanks for taking the time to read my post.

Gemsi

Veteran Member

Joined : Feb 2007

Posts : 1050

Posted 7/19/2007 6:15 AM (GMT -7)

That's a brilliant little site Mark, what a good idea!

Co-moderator in the: Cystic Fibrosis Forums

Woe to the child which when kissed on the forehead tastes salty. She is bewitched and soon must die.

Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.

Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Tobi nebuliser, Serevent, Salbutamol, Sertraline, Odansetron, Nefopam, Ciprofloxacin, Ursodeoxycholic Acid, Omeprazole.

Had a Port-a-cath fitted on chest wall since 11th Nov 05

sweetblood

New Member

Joined : Nov 2007

Posts : 19

Posted 11/9/2007 1:30 PM (GMT -7)

I dropped in and sent her a little message. I think its really great what your doing for cf!

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