Posted 7/19/2007 5:58 AM (GMT -7)
I get where your coming from.
My parents are always trying to make me feel better with that. All these people have lived blah blah years, and are still good.
A lot of people I know past there 40's though, were diagnosed late really late, or had a lung transplant.
It is hard to bite your tongue, but at the same time, I can only be happy for the people who have lived longer than the expectancy. Because even if they have still suffered from CF.
A lot try to live there life as fully as possible. Knowing that things could have been so much different. I don't feel angry at them, for actually being able to live a full life.
I do feel angry at my parents though, as they're those sorts of people, who just make you feel like your making everything up. Infact just last week, my mum text me, while i was in hospital on iv's, to say that I should be more like my brother who just gets on with life, and holds down a job, and never whinges.
What she forgot to mention was that Nick also only has once yearly IV's, isn't colonized with psudomonas, doesn't HAVE to do physio everyday, takes half the amount of tablets as me, and also doesn't have a neuro condtion aswell as CF.
My rant is, that people just SHOULDN't be compared to anyone else, because it makes you feel so louzy about yourself.
All I can say now is just ignore those ignorant people, and look at things you CAN do.
Try to set yourself goals, that realistically you can reach. Even if it's something as simple as drinking a full skandishake. You'll feel better for it. As sometimes, people jus keep on putting you down more and more, and you can't see any good about yourself.
I know this post has gone around in a very large circle, and cover's things you've not even ranted about, but it does all fit together somehow:)
Co-moderator in the: Cystic Fibrosis Forums
Woe to the child which when kissed on the forehead tastes salty. She is bewitched and soon must die.
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Tobi nebuliser, Serevent, Salbutamol, Sertraline, Odansetron, Nefopam, Ciprofloxacin, Ursodeoxycholic Acid, Omeprazole.
Had a Port-a-cath fitted on chest wall since 11th Nov 05