I also have Psuedomonas all of the time. It's a right pain. I'm going to start having IV's every 3 months, whether I need them or not, and possibly 2 weeks of Oral Ciprofloxacin, if I'm struggling before my next lot of IV's.
How many IV antibiotics are you on at a time? And are you on the same all the time?
Sometimes a rotation of a couple of them is needed.
I always start to feel a bit sticky lunged again, a couple of weeks after IV's. I just try to make sure, I remember all of my physio sessions (which isn't good, when you have a brain as useful as a cabbage for remembering things.)
I have a port-a-cath on my chest wall, it's not really visable when it's not accessed, and holds the least infection risk. It's just like a bump under the skin.
I'm going to get married, the end of next August, yes I do feel VERY guilty about
it at times. We had the discussion again last night, as he's also taking on my depression and a currently unknown muscle condtion. I feel guilt all the time, thinking I've forced him into it somehow, but he says not.
I'm only 21, so definately not the oldest:P I'm not sure who the oldest is on this site, but on another site I go on, there is someone at 45! And apparently someone in there 60's.
Hope this has answered some of your questions, and helped in someway. Feel free to quiz us all you like, till you get the answers you need.
Oh, and last of all, welcome to Healingwell:)
Co-moderator in the: Cystic Fibrosis Forums
Woe to the child which when kissed on the forehead tastes salty. She is bewitched and soon must die.
Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Tobi nebuliser, Serevent, Salbutamol, Sertraline, Odansetron, Nefopam, Ciprofloxacin, Ursodeoxycholic Acid, Omeprazole.
Had a Port-a-cath fitted on chest wall since 11th Nov 05
Post Edited (Darkies Gem) : 7/21/2007 4:50:24 AM (GMT-6)