I think the idea is, you CAN keep getting rid of Psuedomonas, in the begining. If you have 3 sputum samples in a row though that say psuedomonas, and you're on antibiotics to get rid of it. They diagnose you at colonized with Psuedo, which does mean you won't be able to rid of it, only keep it under control.
Generally to prevent it causing problems a lot, you will be put on a nebuliser. You will have nebulised antibiotics. Over here in England, it's generally either Colomycin (AKA Colistin, Promixin) or Tobi (Tobrymycin). I found these used to work really well and keep me off IV's for longer, until my allergies to both antibiotics got worse.
I can't tolerate colomycin through IV anymore, it makes my tongue swell and I go all itchy, through nebuliser I just go all itchy. Tobrymycin I can have IV, but nebulised it destroys my throat.
As soon as Psudo starts to show with me (about
4 weeks before doctors can tell) my lung function drops, ever so slightly. After 4 weeks of moaing about
it, by lung function has dropped by about
20% to just 70%. after 2 weeks of IV's, it goes up to 90%.
I think because i spot the signs so early, and have my course of cipro, it doesn't hit my lungs too much.
Doctor's generally just ignore me too, I really have to hit them round the head a good few times sometimes to get them to listen. Then they realise I'm right, and promise me that the next time I'm in hospital, I will get my favourite room. Wrapped around my little finger I have them.
There may be a reason why a doctor doesn't think there the same muscle problems though. When they first started to actually believe me about
my muscle pains (took about
2 years) a pharmacist and doctor went through all my medication, and discussed the possibilties of certain medication being the trigger. They cancelled Cirpo out, and I know there was a specific reason for it, but I can't recall. Question your doctor about
why he doesn't think it's the cause, and what could be the possibilities. Hopefully he'll be able to help you.
I'm getting better at doing my meds. I still struggle though with the tablets that don't have an immediate effect. Like my vitamins and Ursodeoxycholic Acid. I never miss my enzymes, as if miss them, I suffer too bad.
Co-moderator in the: Cystic Fibrosis Forums
Woe to the child which when kissed on the forehead tastes salty. She is bewitched and soon must die.
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Tobi nebuliser, Serevent, Salbutamol, Sertraline, Odansetron, Nefopam, Ciprofloxacin, Ursodeoxycholic Acid, Omeprazole.
Had a Port-a-cath fitted on chest wall since 11th Nov 05