Hiya, would also like to welcome you to the boards.
The going really does sound like it's tough.
One thing I find with CF, it's not the amount of mucous produced, it's how thick and sticky it is. Very gross I know.
Symtpoms to me, sound similar to Bronchiectasis. I know a lot of older patients diagnosed with CF, have previosly been treated for this, as it is similar. Here s a webiste with some info:
Hope they find an answer soon, so your daughter can start getting better.
Co-moderator in the: Cystic Fibrosis Forums
Woe to the child which when kissed on the forehead tastes salty. She is bewitched and soon must die.
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Sertraline, Odansetron, Nefopam, Ciprofloxacin, Ursodeoxycholic Acid, Omeprazole, Saline neb/PEP system, Piriton, Mirtazapine, Diazepam.
Had a Port-a-cath fitted on chest wall since 11th Nov 05