Darkies Gem said...
Hiya, would also like to welcome you to the boards.
The going really does sound like it's tough.
One thing I find with CF, it's not the amount of mucous produced, it's how thick and sticky it is. Very gross I know.
Symtpoms to me, sound similar to Bronchiectasis. I know a lot of older patients diagnosed with CF, have previosly been treated for this, as it is similar. Here s a webiste with some info:
Hope they find an answer soon, so your daughter can start getting better.
THANKYOU FOR YOR WARM WELCOME. SHE HAS A LOT OF THICK & STICKY MUCUS. THE DR. CANT BELEIVE HOW THICK & STICKY IT IS. HE HAS RULED OUT BRONCHIECTASIS. SHE HAS SEE ALL TYPES OF DRS. NOW THEY ARE GOING TO SEND HER ANOTHER INFECTOUS DISEASE DR. BECAUSE SHE HAS A TOP DR. IN BOSTON & HE DONT KNOW WHERE TO GO FROM HERE EITHER SO THATS WHY HE IS SENDING HER TO ANOTHER INFECTIOUS DISEASE DR, SHE ALSO HAS A LOT OF PLUGGED MUCUS POCKETS & CANT GET THEM UNPLUGED. THANKS AGAIN.