hi. I am so sorry to hear about your son. Our youngest daughter (2 1/2 years old) was diagnosed with CF a few months ago. Unfortunatly i can't offer you much info on how your son's life will be living with CF. I have the same question for our doctors and they just tell us that different people respond differently to treatment. The good news is that our little angel is getting close to 3 years old and she is still not on any treatments. She may be starting enzyme therapy in the next little while though, but we have made it this far already.
I am a mother too and i know how you feel. It is very terrifying. I just wanted you to know that you are not alone. I hope only the best for your son and your family. Take care.