Hi there! Welcome too healing well!!!
I have CF related liver disease or Mild liver cirrohsis (depends on which doctor I ask). They describe it too me, as my liver been 'sludgy' and also inflamed. I take Ursodeoxycholic Acid, which doesn't make it better, but stops it getting worse.
I've not heard anything like this about
a feeding tube. My friend has the same state liver cirrohsis as me, and he has a peg for feeding. He's never mentioned anything like this though. As far as I know the tube goes directly into your stomach, and is there for feeds, when low weight is a major issue.
Hope you are well!
Gem
xxx
Co-moderator in the: Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ciprofloxacin, Ursodeoxycholic Acid, Saline neb/PEP system, Piriton, Mirtazapine, Diazepam, slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05
ss4155
New Member
Joined : Sep 2007
Posts : 2
Posted 10/10/2007 10:04 AM (GMT -7)
Thank you for the reply this is a 7 year old child with cf they tell us that his liver and spleen are swollen he is underweight so i am sure that is what the feeding tube is for he is also on the same medicine and hasd been for 2 years but has been having abdomen pain just wondering about
what could be done have they ever talked to you acout liver transplant?
Currently it is Wednesday, December 12, 2018 5:13 AM (GMT -7)
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