After having worked for a research project about
the lives of CF patients, I am pursuing CF as the topic for my undergraduate senior thesis. I’ve decided to turn to this forum as a way of hearing about
CF from the people that know it best (that’s you). Though I have done quite a bit of reading about
CF, I still have a few questions that I hope some of you with CF, with family or friends with CF… really anyone that knows more than I do, could help me out with.
Please know that all of your responses will be treated with the greatest respect and all of your comments will remain anonymous. Feel free to PM me if you’d prefer your messages to be more private. I am so eager to learn more about
CF and I am confident that any information you provide for me will be extremely helpful.
I’m interested most in how CF impacts the sense of self, specifically in terms of living with CF into adulthood. Consider the following:
1. I have noticed talk about
adults with CF as being an exception, or that some people are living longer than they are “supposed to” with CF. Have you made life decisions based on the assumption of a shorter life expectancy?
If so, how do you feel about
those decisions? Regretful? Happy? Disappointed? Optimistic?
2. How central a role does CF play in your identity now?
How has the role of CF as part of your identity changed over the course of your life?
Feel free to let me know anything else about
CF that wasn’t asked about
in these questions (and I’m sure there’s tons to tell). My research is focused mostly on issues faced by adults living with CF, but I’d appreciate any feedback. Thank you so much!
Post Edited (MarthaK) : 1/1/2003 5:46:38 AM (GMT-7)