A little help?

In answer to your questions:

I don't believe I have made an major desicions in regards to looking at how the furture may effect me. I've done the opposite, and rather than looking forward to my future, I try and only think about now, and how I can help me now. When I did used to give myself goals, they were always getting broken, and I always got disappointed because I couldn't quite reach where I expected myself to be.

With life expectancy, I try to see is as a target age to get to. I've beat 2 life expectancy's now, at 5 and 12. I can't stay very positive about what the future holds, or the life expectancy, because I have seen CF friends who have reached 31, one in there 50's, but far too many in there 20's. The CF life expectancy is an average, so I know that for all the really young people I have know who have died, there must also be the same amount of old people with CF.

I am a very CF thinking person. Everything I do in my life has something to do with CF in it. If I go out to the shop, I have to consider exactly how my lungs are feeling, or what level of tiredness I'm at before I even consider going. I don't like showing total weakness in public. If I don't look at every aspect of how I feel before leaving the house, it's more of a shock and worry when say, my chest starts playing up.

I find myself panicking a lot, if I'm not expcting something to happen.

I also have to be on constant alert for infection signs. I prefer to spot signs before an infection starts to actually effect my chest. That way IV antibiotics can kick in before it really starts too effct me fully.

Ermmmmmm............................Can't think of anything else you might want to know, but if you think of anything you want to know more about, feel free to ask. I'm happy to answer any questions you want answering.

Co-moderator in the: Cystic Fibrosis Forums

 

 Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.

 Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ciprofloxacin, Ursodeoxycholic Acid, Saline neb/PEP system, Piriton, Mirtazapine, Diazepam, slow-sodium, Skandishake and Fresubin.

Had a Port-a-cath fitted on chest wall since Nov 05

MarthaK

New Member

Joined : Oct 2007

Posts : 2

Posted 10/30/2007 12:52 PM (GMT -7)

Thanks for your help... I really appreciate your willingness to share your experiences!

sweetblood

New Member

Joined : Nov 2007

Posts : 19

Posted 11/9/2007 2:16 PM (GMT -7)

Hello! I'm happy you are taking such an interest in CF, it will help research go far! I'll do my best to help you out!

The first question I'm going to say no to. I dont want to base my desisions off of this because I dont want to say that my life will be short, heck, I might live longer than you. Anything could happen, so if I'm going to base my life plans on having a shorter life, then every body else might as well too! They healtiest person on the face of the earth and they could be in a car accident or something.

I have to base my life around it. I take so many pills and treatments, but I try to live as normal a life as I can. I play basketball and I'm one of the fastest runners on my track team. I'm a stronger person for it, I know not to take life for granted, becuase it could be gone in a blink of an eye. I know you have to fight for what you want, whether it's as simple as fighting for a lower price at a thrift store or it's fighting for your life.

I have to go now, but email me at leah_hollis94@yahoo.com if you have any more questions! Dont hesitate to ask!

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A mighty oak is the result of a nut that held it's ground.

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