Hi my daughter was a premmie ( 3 pounds) and has always had lung problems. mostly in the winter. she gets really bad coughs ( they said it was asthma) it would last for weeks at a time and many Er visits. she is on the breathing treatments at home but it dont seem to help her cough. (steroids do at times) she is on singlar and a few other meds as well. ( allergie and asthma meds . i dont have the list in front of me ) but in the winter nothing seems to help.
She is also a picky eatter but not to bad. but a few times a week she will complain of a belly ache.
She complains of her legs hurting very often in the summer ( the bottom of her feet) but i don't see any club feet.
I started researching family hystory and tonight found my lost brother ( well i found his mother *same dads diffrent mothers*)
I told her who i was and asked if i could ask some medical questions about my brother as my "dad" is no help and we have never met.
she said sure and was very helpful. I asked if Cystic Fibrosis ran on my dads side of the family and she got real quiet. I asked again and she said my brothers 10 year old daughter has it and my aunt ( dads sister) passed away from it. but she did say my neice has no lung problems more belly and problems with her legs.
Now i dont know much about Cystic Fibrosis but i am now clearly worried. I keep saying well it must just be Asthma that's hard to control in the winter. I read that their sweat will taste salty and ive never noticed this with my daughter. ( i've found myself kissing her forhead the last two days to make sure) she has been ill throwing up and sore throat in the last two days ( i think its a bug)
since her sweat does not taste salty and her lung problems are mostly in the winter ( thats a good sign its not Cystic Fibrosis right?) i mean it would effect her all year not just the winter right?
She does have allergies also. and gets the dark eyes.
I keep thinking the Dr is just being safe and that its just asthma and allergies. I read online that kids will often complain about belly aches ( when i ask what it feels like she just says it hurts) and I thought her leg cramps was just growing pains although she has been having them for a few years.
she goes to one of the best lung dr's and Cystic Fibrosis Dr's in the state Tuesday but until then I cant seem to stop researching.