Hi there Leah, welcome too Healingwell!
Wow, well done you, for all the sport you do. I find a lot of people just give up the fight after a while. But it is incredibly good to see someone who is fightng back so strongly!
Basketball used to be my favourite game at school, as noone could tell if I started too flake and lose my balance. It was also tremendous fun. I also used to do karate, but had too stop that because of a muscle condition. The proof is definately there though, since stopping all excercise my lung function has dropped in the last year by 10%. Physio just isn't enough to keep your lungs happy, so keep up the excercise girl!
Going round hitting people isn't the best of ideas-no. I also have anger problems, but I have an inflatable punchbag at home. I just completely batter that to bits when something gets me mad. It does mean smoke coming out of my ears, as I try too hold all the anger in, till I get home though. It's very upsetting when people poke fun at you because of CF, and it really hurts deep down, as it's not your fault your have CF. It's not like the people who smoke who make themselves have bad lungs. We should be able too point and laugh at them. Yet a lot of the time it's the oppsite way around isn't it?
Lol, your postis like reading about
me, I used to love English lessons and reading and writing. Even now, I usually have my nose stuck in a book, when I'm not online. I wanted desperately too be a nurse, or a special needs teacher.
Music is good, and again, I use it the same. If I'm feeling happy, or need some energy before I go out-Build me up buttercup by the foundations or Girlfriend by Avril Lavigne, goes straight on. If I'm feeling low, then I end up listning too fall out boy, manic street preachers, Simple Plan, My chemical romance, green day, system of a down. If I'm missing my friends who've died, I tend to listen to Tammy Cochran-Angels in waiting or put on my Alice Martineau sound track.
Music can speak volumes for how you are feeling, and can also help you, get your thoughts into a better order.
I've met many people with CF. One of my best friends is a pwcf. Its handy too talk too him, as he has total understanding when I feel bad, and we support each other a lot. Last time we were in hopsital, one of my other CF friends died. Tony didn't know her, but was instantly there for me, to offer advice and just a friendly ear, and a huge cuddle.
Meeting people with CF, is usually very un-advisable, due too cross-infection issues. There are particular strains of psuedomonas, that are more virulant than others, and cause a quicker rate of deteriation. With other friends, we keep keep a distance of 5ft, and meet outside if possible. This is to protect both ourselves and others with CF.
When we were little cross-infection wasn't such an issue, so me and Tony have both got exactly the same infections, at the same strains. We both have the worst strain, so it's never going to be an issue us meeting, and ignoring cross-infection rules. Just wanted too make sure I said all that. Email and phoning is the safest way.
I'll email you later!
Co-moderator in the: Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild liver cirrohsis, mild osteopenia. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Flucloxacillin, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ciprofloxacin, Ursodeoxycholic Acid, Saline neb/PEP system, Piriton, Mirtazapine, Diazepam, slow-sodium, Skandishake and Fresubin.
Had a Port-a-cath fitted on chest wall since Nov 05