My psych moved my appointment forward a whole 2 days. Impressive huh?
Anyway, due to all the side effects I'm still having, I got in touch with my CF nurse, she's back off holiday now. She thinks the pounding heart that keeps jumping and skipping thing is most likely Lofepramine and that it's not dangerous for me, just very uncomfortable.
She also agrees about
the sickness. Not to sure about
the memory and more depressed thing-she thinks maybe I could have got to this stage anyway being on no meds. Maybe it's just the Lofepramine is doing nothing rather than actually making me worse.
Due to my psych completely ignoring when I rang and asked for help because I was feeling worse, and because of some of the things I admitted of how I'm feeling to my nurse, my nurse has rang my psych. Told her everything, so she can at least think to prepare a solution for next weeks appointment. My nurse might walk over to my appointment with me, not asked her yet, but it's a busy clinic day so I may be out of luck, meaning I'll have to face this alone. But I do have a CF clinic appointment straight away after, so if nothing is sorted and I'm not happy, I might be able to get my nurse to help me out again.
In the meantime I'm still allowed to email my nurse with anything, which is handy because my head is totally overloaded, and I need to be completely honest with someone without fear of breaking any rules and boundaries, and with knowledge that if it gets too bad someone will be there to know everything should I go completely blank again.
I'm still sure psychs and antidpressants are meant to make you feel better not worse? I'm just lucky I got my nurse I guess to help me fight my corner, as I'm not doing too good on my own.
What other types of antid's are there? I've tried a tricylic (Lofepramine), a tetracyclic (Remeron) and a SSRI (Sertraline).
The only one that's been anywhere near helpful was Remeron.
Do you think a new tetracyclic would maybe give me the same help that Remeron used too, or now that Remeron doesn't work anymore do you think that another tetracyclic wouldn't either.
I just want some info so I know what my psych is talking about
if she mentions different meds to me.
If one tricyclic or SSRI hasn't worked, does that mean others won't either?
I want to make this next appointment worth something, or my trust levels are gonna shoot even lower.
Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Ondansetron, Nefopam, Ursodeoxycholic Acid, Lofepramine, Slow-Sodium, Azithromycin, Ciprofloxacin, Omeprazole, Tobi Ineb, Fresubin Liquid Feed, Skandishakes. I use PEP device as my physio.
Had a Port-a-cath fitted on chest wall since Nov 05
Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.
Post Edited (Darkies Gem) : 3/24/2009 9:09:30 AM (GMT-6)