Thanks Realife! I finally have some information for you. There's another name for pseudoseizures which I would have recognized. It's also called Psychogenic non-epileptic Seizures (PNES). I heard from my friend and here's what's going on with you! Your attacks are not seizures. There is a difference in the way an epileptic seizure progresses that is different from the pattern you have with attacks. I'm not going to go into all the clinical stuff, but the difference is remarkable. PNES are brought on by stress or some memory from childhood of abuse that is trying to come through, or some psychiatric problem like anxiety or depression. You do NOT make yourself have these attacks anymore than someone purposely trips and falls. It just happens as a result of built up stress, etc.
The usual treatment is antidepressants and antianxiety medications, which your doctor has put you on. Your doc has you on the right path. It may take many changes of meds to find out what combination works for you. I've been through most antidepressants until I finally found one that is helping a bit. I may need another one added, a dose increase, or something else, but I know I will eventually get there. It takes a lot of patience, and that's hard to have when you feel like crap every day!! Your doc is taking you serioously or she would never have put you on medication to start with. But if you feel she is not, then find one who will!!! It might be helpful to take your husband with you to one appointment and let him describe exactly what occurs when your attacks occur.
You are under a tremendous amount of stress right now, not working, getting denied disability, being afraid to drive, and on it goes. Stressors like that are really taking their toll on you. You need to find a way to release your stress. This board is a great place to start. Do you keep journals? If not, you might want to try that. Or even just write down whatever has you upset at the moment, then tear up the piece of paper and throw it away. It sounds stupid, but it works for some of us. Exercise will make you feel better too. Walking may not be in your best interest right now if you are still having these attacks. Try some dancing by yourself to some upbeat music. If you are very angry about something, get an old board, some nails and a hammer and sit at a table and pound the daylights out of those nails. Anything physical like that will help diminish your stress and you will find the attacks happening less often.
When you have an attack, write down the date, time and what happened right before it. Also write down who was there. Have them write down what they observed; like were your eyes open or closed, were your movements jerky, did you have any injury from it, etc. Take that to the docs with you every visit. I'm hoping that the medication and a few of the ways to de-stress yourself work for you and that you can come on here soon and say "I feel great and I haven't had an attack in 6 months!" In the mean time, just keep telling yourself, it will get better! Keep your hope alive!!!!! I'll be praying for you as well.
Major depression; Bipolar Disorder; Fibromyalgia; Spinal Stenosis; right arm and leg nerve compression; cataracts; glaucoma; IBS; RLS; hypothyroidism; B12 deficiency ... that's enough or I'll get more depressed.