Hi Dodd, Chart from the chronic pain forum asked me to post to you about the Social Security Disability on your wife. I am a little confused about your comment that she has got disability approved? Are you saying she filed and has already been told she was approved and will receive SSD every month? Or, did she file for Supplemental Security Income and is she receiving that? Under SSD you have to pay in so many quarters to be eligible for SSD, it comes out to like working 10 years straight. SSI on the other hand is for people that do not meet the earnings requirements or have never worked. It is much more stricter than SSD because they do count the husbands income and most people do not get SSI if the husband works and makes a decent wage.
Does she have any atty handling the SSD claim? If not, I would look for one locally that handles nothing but SSD claims. Stay away from the attys that do a little of this and a little of that, they are not going to be up to par on anything special at all. I do not recommend what we call the tv guide attys either, the ones on tv that do nothing but toot their own horn on how good they are, they are after quantity not quality files and its nothing but a numbers game to them, they have so many clients that they have no clue who their client is. I know this from working in the legal field as a paralegal for over 20 yrs.
I am so sorry your wife is having so many problems. Have you all thought perhaps maybe a second opinion may be something to consider since she is not getting any better? I know with Lupus its a matter of getting the medications adjusted to meet the individual. I don't know how long she has been on her medications, but if she is not getting better something needs to be done. Is her drs aware that all she is doing is laying bed, I don't think they would want a patient to become bedridden. if they don't know then you need to let them know what is going on. I am assuming that her care is being paid for by your health insurance is that right?
I have crohns disease and did Remicade infusions and one of the side effects of the Remicade is it can induce Lupus and this is what happened to me. I am now on Humira shots for crohns but have to stay on Placquenel because Humira does the same, it can induce Lupus.
I do think you should get yourself to the dr and explain what all is going on in your life and how it is affecting you. It is not affecting just you, it is also affecting your children. You need to be as healthy as possible to keep your family together. I was in your shoes a few years back when I became disabled and totally understand what you are saying and how you feel. I ended up not only having to be put on an antidepressant but I had to get some professional help in the form of counseling. I found a wonderful psychologist that really helped me learn how to cope and deal with my life that had been snatched away and turned upside down literally over night. You really do mourn your losses, your wife will do the same thing. You both probably could use some help to learn how to cope and deal with things. My heart goes out to both of you. Talk to your children as much as you can so they don't think mom is sick because of something they did. Children for whatever reason always think its something they have done when something drastic happens in the family.
If you get a chance and I do know how busy you are with all of this on your shoulders, but come over to chronic pain forum and look up the CP101 and read some of the info there on SSD. Also, SSD has a very good informative website that is user friendly to check things out there. Please keep us posted on how things are coming along.
Moderator Chronic Pain Forum